Physical Disability & Self-Esteem: Life As It Is Now, Coming To Terms, Rising Above

[ArchAngel Gabriel]

All righty folks, how are you?

Car service just dropped me off and I am getting ready to do laundry and try and relax. It was a super great trip and everything went off without a hitch. I am so glad. I'll catch up on everything on very soon.

SFK

Gabe is sad tonight and upset about the job but trying to not let it bother me so much...

I am glad your trip went well.

[akadyke]

welcome home, sfk.

[Rhoda]

Welcome home Shy! We missed you!!

Rhoda and Soren

[Rhoda]

Gabe is sad tonight and upset about the job but trying to not let it bother me so much...

I am glad your trip went well.

Soon? you'll be outta there? With a better job?

[Shyfemmekat]

Y'all are getting me motivated with this cleaning. Although I'll admit I was not excited on the plane to think of coming home and doing it. I know I'll feel better, though, once it's decluttered. Maybe by spring?

I am so jazzed. I met a great guy today and I got to hug him, too!

His name is Sean Swarner and he is a climber of mountains like Everest. Super laid back nice guy and what makes him so awesome is Sean is a two-time cancer survivor. Yep. Here is his info:

Sean Swarner - Cancer Survivor, Climber, Speaker
http://www.seanswarner.com/

He also gives hope to others:

Cancer Climber Association
http://www.cancerclimber.org/sean.html

Here is his book:

Keep Climbing: How I Beat Cancer and Reached the Top of the World
http://www.amazon.com/Keep-Climbing-...1550545&sr=1-1

He also taped with Billy today in a separate segment. The show we did is called Healthcare Campfire and will air in the Washington, D.C. area on Sundays in November so if you live near there you will be able to see it. Yes, I wore my new hat. I am supposed to get a copy of the DVD when it's done and also will have footage of the speaking we did in Washington back in March. (the other hat, LOL) Here are some segments of another one they taped previously:

Healthcare Campfire: Leslie and Allison
http://www.evertube.com/videos/watch...d-allison.html

Healthcare Campfire: Paige's Story
http://www.evertube.com/videos/watch...e-s-story.html

Hopefully the part I did with Shirley looks this good, they seemed very happy with it. I made friends with the makeup artist, a beautiful woman named Michelle who reminded me very much of our own beautiful Precious P. She talked a lot about the Goddess and angels and we dished about makeup and hair.

All my best to everyone and I will be back again soon.

SFK

[ArchAngel Gabriel]

Soon? you'll be outta there? With a better job?

i hope so i definately hope so. i am tired of being ran around.

[Shyfemmekat]

Gabe is sad tonight and upset about the job but trying to not let it bother me so much...

I am glad your trip went well.

Gently (((Gabe)))

My fibro is gross, too, what's the deal?! My Ultram ER didn't do anything for it today nor did the Zanaflex.

Hang in there, sweetie.

SFK

[Peregrine Magic]

As you all know Soren has a real hard time eating solid food because of hys jaw being messed up. Well, tonight while I was eating my solid food at dinner hy was whining that hy hated eating "baby food", and how lucky I was that I could still chew my food. And I said to hym, "stop calling it baby food, it's not baby food, it's differently abled food."

We thought it was hysterical and almost choked on our food laughing............LMAO..............(hope no one is offended?)

No, I'm not offended... even though you nearly made me spit out my cream of wheat...
Peregrine

[Shyfemmekat]

As you all know Soren has a real hard time eating solid food because of hys jaw being messed up. Well, tonight while I was eating my solid food at dinner hy was whining that hy hated eating "baby food", and how lucky I was that I could still chew my food. And I said to hym, "stop calling it baby food, it's not baby food, it's differently abled food."

We thought it was hysterical and almost choked on our food laughing............LMAO..............(hope no one is offended?)


Rhoda and Soren~ LOBO (laughing our butts off)

OMG, so if you save your boxtops will you be able to get prizes like a grabbie-stick, a wheelchair or a cane? If so, count me in 'cause I want a cute new cane in black and silver and crystal....

SFK

[Peregrine Magic]

Y'all are getting me motivated with this cleaning. Although I'll admit I was not excited on the plane to think of coming home and doing it.

You're back! I'm so glad this trip went well-- especially after the last one.

Thanks for the links, but what I really want to see is YOUR interview. Will it be online?

And don't you even start talking about cleaning when you just got back!

Peregrine

PS: A crystal cane, huh? Sounds like that make-up Witch made an impression on you.

[Shyfemmekat]

welcome home, sfk.

Hey, remember that question I asked you? Here's what dreaming about frogs means. My frogs, thousands of them, were being born.

http://www.bellaonline.com/articles/art13554.asp

So it's a good thing. Hugs you, Peepishness.

HA!
butta.
PPC

[guitarboi]

hey folks... shy sounds like you are quite the adventure

my sjogren's is kicking my ass lately. medium to high grade fevers at night which i am being extra careful when walking around my place because it messes up my balance. It goes down to 99.9 in the day which is what I am used to, so I am toughing it out. My rhueme said when one autoimmune disease goes into remission,and you have more than one the other one(s) hit more. whatever, not letting it get me down.

keep your chins up everyone.
xo
GB

[hellboi]

See, what I wanna know is are you going to do back flips or something interesting? I'd be mad if I missed out.

Hugs You & Flings Bubbles,
SFK

LOL..naaaaw...I just annoyed her while she was making a filled cake for dessert.....However..that does give me a really good idea..perhaps I can make the new sitter do backflips?????Lets' see..how to accomplish it.... Oh..I know..I'll shave mah chest..then put on one of mah daughter's bras..stuff it with the insides outta one of the old foam pillows....then forget to close the bathroom door when I take a whiz..ROFLMAOOOO

[Peregrine Magic]

Y'all are getting me motivated with this cleaning. Although I'll admit I was not excited on the plane to think of coming home and doing it. I know I'll feel better, though, once it's decluttered. Maybe by spring?

I am so jazzed. I met a great guy today and I got to hug him, too!

His name is Sean Swarner and he is a climber of mountains like Everest. Super laid back nice guy and what makes him so awesome is Sean is a two-time cancer survivor. Yep. Here is his info:

Sean Swarner - Cancer Survivor, Climber, Speaker
http://www.seanswarner.com/

He also gives hope to others:

Cancer Climber Association
http://www.cancerclimber.org/sean.html

Here is his book:

Keep Climbing: How I Beat Cancer and Reached the Top of the World
http://www.amazon.com/Keep-Climbing-...1550545&sr=1-1

He also taped with Billy today in a separate segment. The show we did is called Healthcare Campfire and will air in the Washington, D.C. area on Sundays in November so if you live near there you will be able to see it. Yes, I wore my new hat. I am supposed to get a copy of the DVD when it's done and also will have footage of the speaking we did in Washington back in March. (the other hat, LOL) Here are some segments of another one they taped previously:

Healthcare Campfire: Leslie and Allison
http://www.evertube.com/videos/watch...d-allison.html

Healthcare Campfire: Paige's Story
http://www.evertube.com/videos/watch...e-s-story.html

Hopefully the part I did with Shirley looks this good, they seemed very happy with it. I made friends with the makeup artist, a beautiful woman named Michelle who reminded me very much of our own beautiful Precious P. She talked a lot about the Goddess and angels and we dished about makeup and hair.

All my best to everyone and I will be back again soon.

SFK

I went back and actually read all of the links you posted, and to my surprise they were all about cancer survivors. Thank you! It was inspirational to read their stories. Sorry if I sounded like a jerk. Actually, sorry to leave evidence that I'm a jerk. It's supposed to be a secret.

*****************************

A general message:

I'm going in for chemo tomorrow, and they'll give me steroids like they always do, so it will be a good day to channel that energy into some productive phone calls. I want to check out clinical trials, figure out where I want to get a second opinion and what I'll need to bring with me, etc. Being sick is so complicated. I thank the universe that retirement has given me plenty of time to stare at forms and instructions which make no sense on the first seven readings.

Brilliance and persistence to all...
Peregrine

[Surayna]

Stopping in to say Hi!

Welcome home Shy. I'm glad to hear your trip went well.

Peregrine Magic - you will be in my thoughts tomorrow.

hellboi - Have fun with your sitter... I hope you get a good one.

Rhoda - I am LMBO with you. That was funny!

To the rest of you... I hope you have a good day tomorrow.

It's 2 am, and I am still not asleep. I've had a migraine for two days now. This afternoon my vision got so bad that I couldn't see our daughter sitting on her bed from her door way. She was nothing but a shadow. Totally freaky... It took about 20-30 minutes and it cleared up.

I did manage to make it out to our other daughters football game tonight. They won, so they are now 5-0. Sadly one of the boys on the other team broke his femur during a tackle. The game was delayed while they called the ambulance and fire truck out.

Two things tonight really hit me tonight. One was when they did the National Anthem before the game... it was totally emotional. The other thing I thought was just incredibly sweet was that when the boy with the broken leg was down on the field, both teams were kneeling out of respect. I had never seen that before. It just really touched me.

We have 2 more birthdays to go in the next 3 days before our 4 birthdays in 2 weeks is over. I am so ready to be done with them all. Every time I turn around lately it is one teen drama after another. Most are rather harmless, and some what cute... but ugh these kids have such busy hectic lives with so many freaking friends/boyfriends/and now the 14 yr old has a girlfriend. It just amazes me how quick these kids are growing up. Once the birthdays end it should calm down for a bit. I am thinking the stress is either the cause, or at least a major (totally lost the word here) um, addition? (not right word, but having major brain fog) to the migraines.

I need to get off here... I'm totally losing words, and I need to lay down. I've been sleeping pretty good, but I did manage to get a short nap (very short) today, and now I am not tired for some reason.

As I said earlier, I hope ya'll have a wonderful day tomorrow.

Jenna

[MiamiButch]

Hey everyone! : )
Well, fishing does WONDERS for me, I highly recommend it as mental relaxation therapy! : ) I caught FOUR HUMOUNGOUS (16-20lb) Lane Snappers, two 5lb red snapper, one mangrove snapper and about five hundred mosquito bites. lol The important part is that I am feeling a WHOLE lot better about my life, and life in general. : )
Shy, I'm glad you're back, and I'm glad things went well. Peregrine, I got your letter and CD in the mail yesterday, thank you so very much for both, you are and have always been a great inspiration to me. Blessed be, my friend. I'm going to be creative and send you something soon. Hang in there, have faith and remember that you have friends pulling for you. Hellboi, I would have paid money to see the expression on your sitter's face if she were to catch you in the bathroom in that getup!!! LMAO
Well, I'm going to start thinking about how the heck I'm going to cook up all this fish! Have a great day everyone, and may your weekend be as fun and festive as my fishing/meditation trip was. : )

[Rhoda]

Anybody ever hear music artist John Legend?

My supervisor let me listen to one of his cds, I really liked it! I bet you could dance or wiggle while sitting, or bounce your head up and down to his music and rock out. She got his cd for $1.60!! at JCPenny's.

Not a bad price..............yep I said one dollar and sixty cents. I've never seen music that cheap before.........have you?

[Rhoda]

Hey everyone! : )
Well, fishing does WONDERS for me, I highly recommend it as mental relaxation therapy! : ) I caught FOUR HUMOUNGOUS (16-20lb) Lane Snappers, two 5lb red snapper, one mangrove snapper and about five hundred mosquito bites. lol The important part is that I am feeling a WHOLE lot better about my life, and life in general. : )
Shy, I'm glad you're back, and I'm glad things went well. Peregrine, I got your letter and CD in the mail yesterday, thank you so very much for both, you are and have always been a great inspiration to me. Blessed be, my friend. I'm going to be creative and send you something soon. Hang in there, have faith and remember that you have friends pulling for you. Hellboi, I would have paid money to see the expression on your sitter's face if she were to catch you in the bathroom in that getup!!! LMAO
Well, I'm going to start thinking about how the heck I'm going to cook up all this fish! Have a great day everyone, and may your weekend be as fun and festive as my fishing/meditation trip was. : )

Holey Cow!!! I'm going fishing with you!!!! You are awesome!!!!

Rhoda

[Rhoda]

i hope so i definately hope so. i am tired of being ran around.

One of Soren's Butch friends, Yo, went to work for Walmart and they promised to not make hym lift stuff and stock because hys back was f*cked up, and what did they make hym do? Yep, Lift and stock. Hys back got even more f*cked up and hy couldn't make them pay any disability or workmans comp or anything. Walmart is very bad to their employees. But when you need a job, you need a job. That's what sucks. I can never leave my job even though I want to just be a potter and make pottery, cuz I HAVE to have the insurance and other benies. I'm almost through with my degree, and I'm hoping to get a better job here that pays enough that I can get health insurance for Soren. I'd like to be an advisor. I've been doing it for this department for 7 years, so I'm hoping that will help me get a real advisor job. I don't know what it pays but it's got to be better than the 14,000 we live on now. Yea that's right. On paper it says with benies I get 36,000 but my take home is 14,000. Yea, and I'm still whining..........I whine alot. I confess, I'm a whiner.

Hope your job prospects look better real soon Gabe.

[Peregrine Magic]

Holey Cow!!! I'm going fishing with you!!!! You are awesome!!!!

I caught a small shark as a young girl and the creature was such a killing machine that the only way my dad could get it out of the boat and away from me was to shoot it first. I grew up in the wild west.

Anyway, I've haven't been fishing since. Still, I've packed up some rice and limes, and I'm shamelessly on my way over for dinner.

Peregrine

[Rhoda]

I caught a small shark as a young girl and the creature was such a killing machine that the only way my dad could get it out of the boat and away from me was to shoot it first. I grew up in the wild west.

Anyway, I've haven't been fishing since. Still, I've packed up some rice and limes, and I'm shamelessly on my way over for dinner.

Peregrine

I quit fishing when a cotton mouth landed centimeters away from the inside of the bass boat I was in with my son who was only 2 at the time. Nope, not going fishing again.......

Rhoda

[Peregrine Magic]

I quit fishing when a cotton mouth landed centimeters away from the inside of the bass boat I was in with my son who was only 2 at the time. Nope, not going fishing again.......

I didn't know what a cottonmouth was, so I looked it up on the internet. I may never sleep again... (I will only have beautiful dreams... I will only have beautiful dreams...)

So let's talk about food. Let's keep the water life on a plate just for right now. (Thank you for your sacrifice, my relations.) Miami, how are you gonna cook up that fish?

Peregrine

[MiamiButch]

Well, Pergrine, I had one of the red snappers last night, stuffed with a wonderful rice/almond stuffing, grilled whole, served with a nice side of fresh veggies and a nice cold glass of milk (I don't drink alcohol). Tonight's lane snapper will be shared by my best friend Josie, her girlfriend Yoli and myself, and it will be hazelnut crusted lane snapper filets on a bed of garlic/pesto linguini. For Sunday, I'm going to make a fresh fish stock out of the head and bones of the lane snapper, and since I have shrimp, crab, fish, mussels, clams and a few stone crab claws (courtesy of my neighbor fishing buddy) I'm going to make a Sopa Marinera (mariner's soup). Are you hungry yet? lol

[Peregrine Magic]

Well, Pergrine, I had one of the red snappers last night, stuffed with a wonderful rice/almond stuffing, grilled whole, served with a nice side of fresh veggies and a nice cold glass of milk (I don't drink alcohol). Tonight's lane snapper will be shared by my best friend Josie, her girlfriend Yoli and myself, and it will be hazelnut crusted lane snapper filets on a bed of garlic/pesto linguini. For Sunday, I'm going to make a fresh fish stock out of the head and bones of the lane snapper, and since I have shrimp, crab, fish, mussels, clams and a few stone crab claws (courtesy of my neighbor fishing buddy) I'm going to make a Sopa Marinera (mariner's soup). Are you hungry yet? lol

Oh...my... Gawd... You sure do know how to talk to a girl...

Peregrine -- giving her oatmeal the evil eye

[julie7128]

I'd like to share a true story of courage, and rising above the bad hand that life can deal you. This true story is about a 25 year old man, who was left paralized from tha chest down for the rest of his life do to a construction accident. Because he was being paid "under the table" he was left pennyless, and without medical. This young man will always be my biggest hero........because never once did he ever feel sorry for himself or complain ( even tho he had every reason too). This hero is my son. After a one month induced coma, I will never forget the helpless tears I couldnt fight back when I walked in his hospital room. This couragous young man took my hand and said," please mom, dont cry, lets be happy I'm still alive". He has spent the last two years being thankfull he is still alive, when most people would be hateing the world. When I brought him home I was so scared because I knew I didnt know the first thing about taking care of him. But it was he that kept my head up, his strengh and love for life is what kept me going,when it should have been the other way around. I'm very proud to call him my son.......but at times dont feel I deserve to be called him mother...but nevertheless...he will always be my biggest hero!!!

[hellboi]

Wow Miami! You musta coaught a tone of fish..even after cleaned and boned *yeah..I knowthere's an actual term for tha...but it just won't enter my brain right now...*
I think mah face and eyes are swelling...just from reading about alla the great seafood *I'm allergic...but..ya know..I actually tried a bite of shrimp once..it was well worth the trip to the ER LOL*

[Peregrine Magic]

I'd like to share a true story of courage, and rising above the bad hand that life can deal you. This true story is about a 25 year old man, who was left paralized from tha chest down for the rest of his life do to a construction accident. Because he was being paid "under the table" he was left pennyless, and without medical. This young man will always be my biggest hero........because never once did he ever feel sorry for himself or complain ( even tho he had every reason too). This hero is my son. After a one month induced coma, I will never forget the helpless tears I couldnt fight back when I walked in his hospital room. This couragous young man took my hand and said," please mom, dont cry, lets be happy I'm still alive". He has spent the last two years being thankfull he is still alive, when most people would be hateing the world. When I brought him home I was so scared because I knew I didnt know the first thing about taking care of him. But it was he that kept my head up, his strengh and love for life is what kept me going,when it should have been the other way around. I'm very proud to call him my son.......but at times dont feel I deserve to be called him mother...but nevertheless...he will always be my biggest hero!!!

Hi, Julie. Welcome. It will be interesting to me to hear your perspective as a caregiver. I know Shy's seen it from both sides. I have children of my own and I can only imagine how difficult this situation is for you. Peregrine

[Shyfemmekat]

Quick drive by hello...will be back tomorrow night. Hugs to all...

SFK

[MiamiButch]

Hellboi, I DID catch a hellalotta fish! I caught up for all the times I went fishing and caught bupkus. You reminded me of the ONE time I ate at Captain Crabs Seafood takeout. My ex and I ate a bucket of garlic shrimp from there while we sat at the drive in, watching a movie. I started feeling my throat itch, but since I had just gotten over a cold, I thought it was that. Half way through the movie my ex looks at me, and she FREAKS! I''m like, "What?" and she just points at the rearview mirror. Well, my face was bright red, and SWWWOOOOLLLLEENNN, my lips made Angelina Jolie's look like she ate a lemon! I'm freaking out at this point, because NOW I'm having problems breathing, like when my asthma hits. Long story short, I had gotten an allergic reaction to the garlic crab because they were OLD!! I spent two days in the hospital, bloated like a toad, and my ex went over to the Captain Crab and told them about what had happened. The manager offered to give us a free bucket o' crab, and my ex told them he was INSANE, that the FIRST bucket almost KILLED me. We got our money back AND a written apology. lol I love it when femmes go postal because they want to protect US! ; )

Wow Miami! You musta coaught a tone of fish..even after cleaned and boned *yeah..I knowthere's an actual term for tha...but it just won't enter my brain right now...*
I think mah face and eyes are swelling...just from reading about alla the great seafood *I'm allergic...but..ya know..I actually tried a bite of shrimp once..it was well worth the trip to the ER LOL*

[Shyfemmekat]

Okay, I have officially slept so much that my eyes and back hurt.

I did manage to get laundry caught up and the dishes, and I made a huge pizza! Turkey Italian sausage, red bell peppers, onions and mushrooms with herb crust. Now I don't have to cook again until tomorrow.

I like some kinds of fish but it is sooooooooo expensive for the kinds I like. We get it once in a while if they have tilapia, perch or something cheap.

Well, tomorrow is the day I am going to really begin getting in shape. If any of y'all are trying to lose weight and get into as good shape as you can and want to extra support, holler at me. I have to lose a whole PERSON!

Rhoda, I will be giving that CD a spin at dinner time. Many thanks!

Guess I better go make coffee and get in the shower. Rhon is still sick so I'll be calling Bill to take the cab to the grocery today.

SFK

[Shyfemmekat]

I'd like to share a true story of courage, and rising above the bad hand that life can deal you. This true story is about a 25 year old man, who was left paralized from tha chest down for the rest of his life do to a construction accident. Because he was being paid "under the table" he was left pennyless, and without medical. This young man will always be my biggest hero........because never once did he ever feel sorry for himself or complain ( even tho he had every reason too). This hero is my son. After a one month induced coma, I will never forget the helpless tears I couldnt fight back when I walked in his hospital room. This couragous young man took my hand and said," please mom, dont cry, lets be happy I'm still alive". He has spent the last two years being thankfull he is still alive, when most people would be hateing the world. When I brought him home I was so scared because I knew I didnt know the first thing about taking care of him. But it was he that kept my head up, his strengh and love for life is what kept me going,when it should have been the other way around. I'm very proud to call him my son.......but at times dont feel I deserve to be called him mother...but nevertheless...he will always be my biggest hero!!!

Thank you so much for sharing this with us. A good attitude is so important and that he could encourage you even while he was going through a very rough experience makes quite a statement about how he was raised.

SFK

[Woodie69]

Hi Folks,

I promised to let you all know what I know. So, this is it...

I have 3 ovarian cysts that I knew I had from 2 other gyn's I saw when I was a very young teenager. Anyway, the cysts have ulcerated. I also have two huge fibroids growing inside my uterus (one is almost 8 cm, and the other one is 6.8 cm's), plus a ton of others that are too numerous to even count. I also have something embedded inside my uterus, that she cannot figure out what it is. So, my organs will obviously be biopsied after surgery. I was on morphine for pain, but found out that I was highly allergic to it. So I am on something else (I can't remember the name of it).

The 2 other gyn's I saw I got the paperwork from them, and there was not one word written down about my pain issues, but there were copies of my old ultrasounds, and sonograms. This information just enraged me. It has taken me a very long time to really just get a handle on this fact. I could just fly off the handle with the rage I feel inside. All they wanted to know was how I was having sex with Rosie, and how I packed and binded. That was about it. I could just spit. That is where I am at with those jerks. And to think I had to pay cash for my medical records they had from 20+ years ago. I just shake my head. Talk about ignorant, and poor healthcare.

There is no news yet on the biopsies for my bladder cancer. My dr said that she has to operate to see what is going on inside there. It will explain the pain in my back as well. I am scheduled for surgery on the 16th.

Thank you all for your calls, emails, and snail mail (I love to get mail - it makes me so very happy, just ask Jane my postal carrier - she swears I must be a drug dealer or something because she says that she never had a customer so happy to get a card in the mail (thinking money/drugs were inside it)). Walking to the mailbox with Dino or greeting Jane at the front door with my furbabies makes everyone just .

So anyway, I am feeling much better knowing what it is I am dealing with for now. After surgery we will obviously know alot more about what's going on.

Love,
Andrew

[Jules]

Woodie,
Actually, that's fairly good news! Fibroids, although painful, are at least benign. In the lab we called them "fireballs." Very fibrous and hard. If the ovarian cysts are full of just fluid is also another good thing...anything solid might be a harbinger of bad news. Your pain issues should come close to being resolved with a hysterectomy.

I'm not sure how they're addressing your bladder issues...what exactly are they seeing? I do hope you have gotten some new doctors and aren't seeing the same idiots that were asking you questions that had nothing to do with your health issues!!

Thanks for keeping us posted, as always you, Rosie and the furkids are in our prayers, with wishes for a safe surgery and speedy recovery.

[hellboi]

Hellboi, I DID catch a hellalotta fish! I caught up for all the times I went fishing and caught bupkus. You reminded me of the ONE time I ate at Captain Crabs Seafood takeout. My ex and I ate a bucket of garlic shrimp from there while we sat at the drive in, watching a movie. I started feeling my throat itch, but since I had just gotten over a cold, I thought it was that. Half way through the movie my ex looks at me, and she FREAKS! I''m like, "What?" and she just points at the rearview mirror. Well, my face was bright red, and SWWWOOOOLLLLEENNN, my lips made Angelina Jolie's look like she ate a lemon! I'm freaking out at this point, because NOW I'm having problems breathing, like when my asthma hits. Long story short, I had gotten an allergic reaction to the garlic crab because they were OLD!! I spent two days in the hospital, bloated like a toad, and my ex went over to the Captain Crab and told them about what had happened. The manager offered to give us a free bucket o' crab, and my ex told them he was INSANE, that the FIRST bucket almost KILLED me. We got our money back AND a written apology. lol I love it when femmes go postal because they want to protect US! ; )

I'm allergic to iodine..soooo...the allergic reaction will happen..even when the seafood is fresh *this really annoys my youongest..as she can't simply send me a box of crab or salmon..like she does her sister...for Christmas LOL*

[MiamiButch]

Andrew, get yourself a lawyer, preferably one associated with GLAAD, and get ready to sue these idiots for a whole SLEW of things, starting with invasion of privacy. How, where and who you do what you do with is neither thier concern nor their business. Second, lack of proffesional etiquette, and I would go RIGHT to the Hospital Administrator and file an official complaint. I don't pack/bind or any of those things, but people know BETTER than to even TRY asking me about my personal life. I didn't study law for a bit so that other people can trample my rights into the dust because of their idiocy and morbid curiousity. Sue the living HELL out of the hospital for even HAVING employees like that working there, because at the very least, they should have had SOME sort of sensitivity training, since it's pretty much basic procedure, at least here in Miami, it is. At the VERY LEAST get a WRITTEN apology from EACH and EVERY one of those idiots who were asking you those personal questions. Oh, hell, I am so MAD right now!! I HATE stupid people, because there's NO EXCUSE for being STUPID! READ A FREAKIN' BOOK, INFORM YOURSELF, DO SOMETHING TO OPEN UP YOUR BRAIN AND AIR IT OUT BEFORE THE MOTHS FINISH EATING IT, IDIOTS!!! Sorry.... I'm ranting again, aren't I? lol Stupid people really get my psychosis kicking into gear, can't ya tell? I'm going to take my little pill now..... LOL

Hi Folks,

I promised to let you all know what I know. So, this is it...

I have 3 ovarian cysts that I knew I had from 2 other gyn's I saw when I was a very young teenager. Anyway, the cysts have ulcerated. I also have two huge fibroids growing inside my uterus (one is almost 8 cm, and the other one is 6.8 cm's), plus a ton of others that are too numerous to even count. I also have something embedded inside my uterus, that she cannot figure out what it is. So, my organs will obviously be biopsied after surgery. I was on morphine for pain, but found out that I was highly allergic to it. So I am on something else (I can't remember the name of it).

The 2 other gyn's I saw I got the paperwork from them, and there was not one word written down about my pain issues, but there were copies of my old ultrasounds, and sonograms. This information just enraged me. It has taken me a very long time to really just get a handle on this fact. I could just fly off the handle with the rage I feel inside. All they wanted to know was how I was having sex with Rosie, and how I packed and binded. That was about it. I could just spit. That is where I am at with those jerks. And to think I had to pay cash for my medical records they had from 20+ years ago. I just shake my head. Talk about ignorant, and poor healthcare.

There is no news yet on the biopsies for my bladder cancer. My dr said that she has to operate to see what is going on inside there. It will explain the pain in my back as well. I am scheduled for surgery on the 16th.

Thank you all for your calls, emails, and snail mail (I love to get mail - it makes me so very happy, just ask Jane my postal carrier - she swears I must be a drug dealer or something because she says that she never had a customer so happy to get a card in the mail (thinking money/drugs were inside it)). Walking to the mailbox with Dino or greeting Jane at the front door with my furbabies makes everyone just .

So anyway, I am feeling much better knowing what it is I am dealing with for now. After surgery we will obviously know alot more about what's going on.

Love,
Andrew

[Peregrine Magic]

I have 3 ovarian cysts that I knew I had from 2 other gyn's I saw when I was a very young teenager. Anyway, the cysts have ulcerated. I also have two huge fibroids growing inside my uterus (one is almost 8 cm, and the other one is 6.8 cm's), plus a ton of others that are too numerous to even count. I also have something embedded inside my uterus, that she cannot figure out what it is. So, my organs will obviously be biopsied after surgery. I was on morphine for pain, but found out that I was highly allergic to it. So I am on something else (I can't remember the name of it).

Good heavens! You'll feel so much better after all of this is removed.

The 2 other gyn's I saw I got the paperwork from them, and there was not one word written down about my pain issues [...] All they wanted to know was how I was having sex with Rosie, and how I packed and binded. That was about it.

Miami is right about the morbid curiosity angle. My FtM ex was once admitted to the hospital for anaphylactic shock and while he was there everyone from the janitor to the aides to every nurse on duty had some invented reason to have to be in his room to get a look at him.

However, speaking of lawyers, I wonder whether those gyns weren't also noting all of that personal info (and ignoring your reports of pain) because they assumed you were just trying to get your female parts removed. God knows that there is a lots of prejudice against gender variant people, and twenty years ago, well... It's probably not possible to do anything about this after all this time, and you need to your energy to heal whatever else is going on, but it is infuriating.

There is no news yet on the biopsies for my bladder cancer. My dr said that she has to operate to see what is going on inside there. It will explain the pain in my back as well. I am scheduled for surgery on the 16th.

Good luck with all of this, Andrew. Have you been diagnosed with bladder cancer already (you said my bladder cancer) or is that still up in the air?

Thank you all for your calls, emails, and snail mail (I love to get mail - it makes me so very happy

I'm terrible at getting mail out the door. But I've been thinking about you!

Strength and healing,
Peregrine

[Rhoda]

Just a reminder, everyone should have gotten the Mindfulness cd by now. If you didn't, let me know and I will send another one.

Rhoda

[corkey47]

Just a reminder, everyone should have gotten the Mindfulness cd by now. If you didn't, let me know and I will send another one.

Rhoda

Ami got hers last week, thank you.

[Rhoda]

Thanks Corkey!

[MiamiButch]

Rhoda, got mine on Friday! THANKS!!! Only one thing, it's making me HUNGRIER! lol All this, look at the food, examine, smell, appreciate... DAMN, I'm drooling! lol I'm gonna keep at it, though, SOMETHING has to work, right? And I truly appreciate the effort and help. : )