Physical Disability & Self-Esteem: Life As It Is Now, Coming To Terms, Rising Above

[Gossamer]

Things are touch and go again. A few days out of bed, typical weakness/pain levels. Inevitably, I over do something (or don't, I can't say for sure anything I do or do not do counts for much) and spend a few days in bed, practically immobile, unable to sleep, eat or drink and in an unspeakably foul mood. Things will change one way or another, I guess.

In better news, I did get to go back to my house where at least it is quiet. My little sister does not live here, and does not spend all day singing here. Which is a blessing. My dad gave me a puppy to help me feel better. Because what I need when I can't care for myself is an infant creature. Although, I gotta say, he's several kinds of cutecutecute.

It's so nice to be able to come here and read about how everyone is doing! If I could get some darn energy (heh) I'd love to be able to be a more active participant in discussion. But things as they are, all I can do read a little and hope everyone knows how great I think they are. Pain free hugs all around.

[Shyfemmekat]

Things are touch and go again. A few days out of bed, typical weakness/pain levels. Inevitably, I over do something (or don't, I can't say for sure anything I do or do not do counts for much) and spend a few days in bed, practically immobile, unable to sleep, eat or drink and in an unspeakably foul mood. Things will change one way or another, I guess.

In better news, I did get to go back to my house where at least it is quiet. My little sister does not live here, and does not spend all day singing here. Which is a blessing. My dad gave me a puppy to help me feel better. Because what I need when I can't care for myself is an infant creature. Although, I gotta say, he's several kinds of cutecutecute.

It's so nice to be able to come here and read about how everyone is doing! If I could get some darn energy (heh) I'd love to be able to be a more active participant in discussion. But things as they are, all I can do read a little and hope everyone knows how great I think they are. Pain free hugs all around.

Hey Gossamer,

Sorry you are feeling crappy. You should have a piece of mail in the next two days and I will see about getting another one out to cheer you up.

Oh my, animals are such a blessing when you are sick. My kids are such a comfort to me when I feel bad. Murmee will lie between my feet at night to keep me company, and the baby, Stonie, kisses me all the time. They love me even when I don't feel loving toward myself.

So what have you named Puppykins? ?

Post when you can, I always love reading your posts!

Hugs (very gently),
SFK

[TopDadddy]

Hello everyone,

I haven't been in here for quite a while. I planted myself a garden this summer (dang near killed me planting it too) I posted a few photos of it in the galleries. OMG it's really taken off I have veggies coming out my ears now LOL. My brother was very kind and built me a raised planter box which has been so much nicer than having to deal with planting and care of my garden on the ground.

What I seem to have a recurring problem with is just how much people don't understand about certain illnesses. For instance I have Fibromyalgia. I suspect it's been brewing for over 15 years now, 15 years of hell to be exact. Sometimes I find myself entering a self pity party of my own, and it just irritates the hell out of me when I do this, but yet it happens.

I think that for those of us who have invisible illness it's both a god send as well as a living hell. There are so many factors involved with something like Fibromyalgia, as well as so many other illnesses. Factors that others can't see. I think that quite often we (at least I do) find ourself feeling very alone, not understood, and trapped in a body that just won't cooperate, and no one seems to get it (or so it feels at times). I find it soooo frustrating. So I guess this is sort of a rant in some ways.

I was just telling a friend today about how difficult it's being for me to get to sleep, get up, actually wake up and get moving, and be relatively alert, just to walk a block by 10:00am to work part time 2 days a week. I have to go through all sorts of contortions to make it happen, and then I find myself completely exhausted by it.

I think I'm just frustrated with the whole ordeal, which happens at times, and like this %@$*& illness my thoughts and emotions about it wax and wane as well.

A majority of the time I keep myself in a cubicle titled "single" because I know that I can't expect anyone to understand all of this or deal with it. It's a lot to take on, and I can be a somewhat difficult person at times as well LOL at least I know it. I've met people who have said, I love you for who you are, whatever that is, but really I wonder if they truly understand what all that entails...... sometimes a hell of a lot. And more times than not they aren't able to do it, people have their own lives. I think it's an extremely devoted, compassionate, loving, and extraordinary person who can and will take the time that's required to love someone with a chronic illness. It's not an easy life. I'm pretty sure I'm not the only one out here with these thoughts. So if you care to jump in please do.

Anyway, I just felt a desire to post the following for informational purposes.

Signs and symptoms
Signs and symptoms of fibromyalgia can vary, depending on the weather, stress, physical activity or even the time of day. Common signs and symptoms include:

Widespread pain. Fibromyalgia is characterized by pain in specific areas of your body when pressure is applied, including the back of your head, upper back and neck, upper chest, elbows, hips and knees. The pain generally persists for months at a time and is often accompanied by stiffness.
Fatigue and sleep disturbances. People with fibromyalgia often wake up tired and unrefreshed even though they seem to get plenty of sleep. Some studies suggest that this sleep problem is the result of a sleep disorder called alpha wave interrupted sleep pattern, a condition in which deep sleep is frequently interrupted by bursts of brain activity similar to wakefulness. So people with fibromyalgia miss the deep restorative stage of sleep. Nighttime muscle spasms in your legs and restless legs syndrome also may be associated with fibromyalgia.
Irritable bowel syndrome (IBS). The constipation, diarrhea, abdominal pain and bloating associated with IBS are common in people with fibromyalgia.
Headaches and facial pain. Many people who have fibromyalgia also have headaches and facial pain that may be related to tenderness or stiffness in their neck and shoulders. Temporomandibular joint (TMJ) dysfunction, which affects the jaw joints and surrounding muscles, also is common in people with fibromyalgia.
Heightened sensitivity. It's common for people with fibromyalgia to report being sensitive to odors, noises, bright lights and touch.
Other common signs and symptoms include:

Depression
Numbness or tingling sensations in the hands and feet (paresthesia)
Difficulty concentrating
Mood changes
Chest pain
Dry eyes, skin and mouth
Painful menstrual periods
Dizziness
Anxiety

And there's a whole lot more not listed here as well, trust me.

~TD~

[Whispertome]

TD

I am not stalking you I promise lol

I know what you mean about Fibro. If someone who is around you who does not have it, or has no understanding, it makes for a miserable time.

It takes me a long time to get moving with that and my back. I have been called lazy or am not beleived..Their problem as far as I am concerned I have found if I eat more organic my pain is not as bad., especially chicken and eggs.They put hormones and who knows else in our non organic. I cannot afford to eat organic everything.but the costs are getting to a point where some cost less than the other...When I had my little farm, I fed my animals organic..Helps if you know what you are putting in your system

I have a little garden myself. We have to plant later up here. My early bird tomatoes are starting to get fruit.. I also have romas and cherry tomatoes. I found a place to put corn in and am so excited..yumm


Positive news for a change. YIPEEEEE No surgery for a long time. My doctor, wish everyone here could go to him. Told me that I need to learn to find my limits and I am not managing my pain meds correctly. He told me to take them all the time, not just when I am in severe pain. I think I was told that after my surgery, but I was so high on the power pain meds, I spaced right past that...

[Sweetstonefemme]

Shy...can you post the link to the list of all the nuropsyc tests for me agin, i have spent some time looking for it and I GIVE UP.....lol

[Whispertome]

Things are touch and go again. A few days out of bed, typical weakness/pain levels. Inevitably, I over do something (or don't, I can't say for sure anything I do or do not do counts for much) and spend a few days in bed, practically immobile, unable to sleep, eat or drink and in an unspeakably foul mood. Things will change one way or another, I guess.

In better news, I did get to go back to my house where at least it is quiet. My little sister does not live here, and does not spend all day singing here. Which is a blessing. My dad gave me a puppy to help me feel better. Because what I need when I can't care for myself is an infant creature. Although, I gotta say, he's several kinds of cutecutecute.

It's so nice to be able to come here and read about how everyone is doing! If I could get some darn energy (heh) I'd love to be able to be a more active participant in discussion. But things as they are, all I can do read a little and hope everyone knows how great I think they are. Pain free hugs all around.

I like peace and quiet when I am not feeling well.

Animals are so therapeutic. One time my Yorkie gave birth to a female that grew to 1.5 lbs. I have her to a young teen who was confined in her chair. She had a little pouch so she could take her places. Her mother said it did wonders for her

[TopDadddy]

TD

I am not stalking you I promise lol

Yes you are, come on admit it LOL

[Whispertome]

Yes you are, come on admit it LOL

Welllllll, maybe a little and ya love it!

[sapho32]

Good morning all,

It has been quite a while since I have posted. At first I was dealing with some PTSD stuff. Then I was dealing with some family stuff. Then I was enjoying the great weather.

I've been doing pretty good lately. The PTSD stuff has abated and I'm taking a break from therapy. The summer always positively affects my mood - sun is such a healer. I haven't been exercising like I should...I've been very tired lately. Not sleepy tired but body tired. I can't figure out why. So I stopped drinking and that has helped a little. I'm drinking a lot of coffee too. I know, I know...not a great long-term plan. I'm also taking quite a bit of vitamin B, which has been very helpful.

I understand about animal companionship and its helpfulness. My little kitty has been pretty sick lately. I spent almost a grand on testing and a brief hospital stay to find out she has severe hypertension. It is causing her retinas to begin detaching...not fun. I'm starting her on medications today, so hopefully she will start feeling better soon. She's been so lethargic and will barely eat. I've been taking food to her little sick bed because she won't leave the bed except to go to the little box. I was terrified she was going to die, but it's looking up now. She's my baby girl, and damnit she's not allowed to die!

In other news, my "father" - I call him Bill - wants to visit in a few months. I'm not sure how I feel about that. He has been an asshole for most of my life, and I had no contact at all for over 10 years. The last 18 months, we have been exchanging letters, and more recently an occasional email. I think I'm ready to see him, as long as it's on my terms. Relationships with crappy parents can be so complicated and icky. I'm eternally grateful that my Mama is sane and loving.

As you can see, I've had quite a bit of emotional stuff going on. Physically, aside from this weird tiredness, I've been good.

I've missed you guys.

[micpfef]

Hi All. I actually have the energy to change my font size and color today (which is surprising though). Maybe it is best said that I am taking the effort.

TopDadddy, Thanks for the information about FMS. I am dealing with being dxed with it right now. I rented a car for the last week and realized how much I wore myself out from not using my chair. Pain was not much of the issue but fatigue sure was. I also wonder about chronic fatigue but I know that it is close to impossible to diagnose so I won't even go there.

Update on the blood loss situation. I went to the doctor on Thursday of last week because I was still feeling so cruddy. She did some repeat tests. I am wondering if anyone can help with what to do to recover from such a blood loss. It is really scary to me. I see the doctor again today. I also have a raging infection going on. They put me on Flagyl and Doxycycline. My Hematocrit was 27.3 (supposed to be in the 36-46 range) and my Hemoglobin was 9.2 (12-15.5 range is normal).

Oddly enough awhile back I self adjusted my thyroid medicine to half the dosage that I was on and they did a blood work for that. I think it is higher than it has ever been and well within the normal ranges. Wow. Thyroid was always one of those things that once on medication, you won't be able to get off from it. Maybe if they took me off all the way I would sleep better. I will be talking to the doctor about that today.

Okay I need to shower and stuff and try to face my day. I am so weary and so worn out. Life is just not going well. I have to talk about getting some help of some sort too I think for the next few weeks. Until I feel better anyway. I worry about falling right now. It is not a pleasant feeling as I am sure many of you know.

Take care all.
Michele

[Peregrine Magic]

Update on the blood loss situation. I went to the doctor on Thursday of last week because I was still feeling so cruddy. She did some repeat tests. I am wondering if anyone can help with what to do to recover from such a blood loss. It is really scary to me. I see the doctor again today. I also have a raging infection going on. They put me on Flagyl and Doxycycline. My Hematocrit was 27.3 (supposed to be in the 36-46 range) and my Hemoglobin was 9.2 (12-15.5 range is normal).

Michelle, you must be utterly exhausted. Those counts are really low and your body won't replace the blood you lost overnight. I would ask whether a transfusion might help you feel better in the interum. The times I had transfusions I felt fabulous immediately.

Peregrine

[Whispertome]

That makes sense Peregrine..

((((((Mic)))))))

I wonder why the doctor is not on top of this. Mic, this is a valid concern, have you talked to your doctor about how this can be taken care of?

I have learned that most docs do not communicate well. I am lucky I have an awesome one..and he actually listens




lol, He knows me too well, tells me yesterday.."know your limits"...ahhhh..haven't found them yet

[Shyfemmekat]

Michelle, you must be utterly exhausted. Those counts are really low and your body won't replace the blood you lost overnight. I would ask whether a transfusion might help you feel better in the interum. The times I had transfusions I felt fabulous immediately.

Peregrine

I agree. That's what they always did for my dad.

SFK

[Shyfemmekat]

Hi Folks,

I need to get caught up on here, maybe tomorrow. I am having a lot of fatigue right now and my fibro seems to be flaring up. I got a lot of sleep today so far but now I hurt so bad I'm sorry I did. Can't win for losing some days.

Sapho, I'd been thinking about you a lot lately. That must be why.

Just wanted to let y'all know I was thinking of you today and I'll try and get back on here tomorrow when I feel better.

SFK

[OutlawDaddy]

Just Driving by to say THANK YOU for my very own BIRTHDAY Thread and all the Wonderful Birthday Wishes. I had a great day, the weather was beautiful, I treated myself well. Thinking of you all. 'll be back again when I have time to tie my shoes. OD

[micpfef]

LOL.... Thanks Whisper Hugs back. Believe it or not I got told that I am too careful and attentive to my medical issues. I am sorry but my life balance revolves around feeling good. When my physical health sucks (which it has for awhile now) my mental health gets blown up to atomic bomb proportions. Go figure that I give a damn about things.

Take care,
Michele

That makes sense Peregrine..

((((((Mic)))))))

I wonder why the doctor is not on top of this. Mic, this is a valid concern, have you talked to your doctor about how this can be taken care of?

I have learned that most docs do not communicate well. I am lucky I have an awesome one..and he actually listens




lol, He knows me too well, tells me yesterday.."know your limits"...ahhhh..haven't found them yet

[Shyfemmekat]

LOL.... Thanks Whisper Hugs back. Believe it or not I got told that I am too careful and attentive to my medical issues. I am sorry but my life balance revolves around feeling good. When my physical health sucks (which it has for awhile now) my mental health gets blown up to atomic bomb proportions. Go figure that I give a damn about things.

Take care,
Michele

Yeah, I had one of my neuro's partners tell me, "You are certainly are well-versed in your disease", and he also got mocking and condescending with me because I knew the terminology. I couldn't believe his attitude. <insert kiss my butt icon here> I thought, "Well, damn, I better be well versed in my condition, no one else lives in this body. I don't place my life blindly in ANYONE'S hands."

Bernie Siegel talks about being "an exceptional patient" in his book, Love, Medicine and Miracles.

Love, Medicine and Miracles
http://www.amazon.com/gp/product/cus...2968111&sr=1-1

While I do not agree with some things in the book, there is much to be gleaned from it. He talks about taking charge of your care and not being afraid to ask for the things you need. I used some of that during my last two hospitalizations, such as not wearing a gown. I wore leggings and big comfy T-shirts. I got up and walked to keep from getting another blood clot even though I was deemed a fall risk. I didn't care, I was NOT getting another clot. They could hoot and holler all they wanted and they did a little but then they got over it.

I hear you on the tie between physical and emotional health. MS is famous for that. It causes depression, mood swings (Boy, howdy!), generalized anxiety (nodding head), and I have difficulty stopping once I cry and any little thing can make me cry some days. The disease-modifying medication I take causes depression and has a black box warning for suicide.

It's hard to deal with illness. Hang in there.

SFK

[Jules]

You go get 'em girl....teach them to do you dirty!

[Woodie69]

Hi Everyone,

I just don't understand the side effects of medicines. It is as if you take xyz they you have to take abc to counteract xyz, but you need to take jkl to counteract abc and so on and so forth. It would make so much more sense to me to have a medicine that just changed the dna of a drug to "combat" the disease it is made for. Maybe I am thinking way too much here.

I know that antidepressants are now pretty most all labeled with a suicide warning on the label. My thinking is why take it then? Sheesh.

My mood is getting better. I have a struggle with my mood being out of wack because of my hormone levels. I have more t than I do e. The off balance of the two really is like a war going on internally. Unfortunately, I have yet to find a dr willing to help me with it. My blood work always prooves it each and every time. It is just so very frustrating.

Now I just am having a struggle with my blood pressure being so very low, and my heart rate just racing. I had the blood work, and have to wait for the results. Then I go in two weeks to see a cardiologist.

TopDadddy,

Those of us who have "hidden" disabilities...I so can relate to your experiences. I too get questioned alot by the public and the medical community about them. It is like no amount of paperwork or documentation is enough to verify it for some. I know exactly what I can and cannot do. It is just a pain in the butt to handle day in and day out.

Michele,

My adopted sister had a small tear (microscopic) in her bowel. She had a huge blood loss as yours is. She ended up having a ton of tests done, and nothing ever turned up. She even went to other dr's because most didn't understand where her blood was going. You can never be too attentive or assertive when it comes to dr's. Remember they are not GOD and are only scientists. You can tell them I told them so. I have your back.

Shy,

I finished putting together your package. I will mail it out tomorrow.

Illness suckes, but so do mean people. You go girl! You tell 'em how it is. No holds bar.

Sapho32,

Glad to see you around town again! You were missed.

My pets are my children. I love them all equally and individually. They are a source of comfort and joy for me. Whispertome has the same exact feelings. You are not alone. There are tons of us here who have close bonds with our pets.


Anyway, I hope everyone is safe, and well. Enjoy your evening. Paris Hilton will be interviewed by Larry King tonight. That should make for an interesting conversation tomorrow (lol). I just hope I don't snort my bottled water out through my nose again.

Take care.

Love and peace,
Andrew

[Jules]

Thanks Woodie for posting about Paris Hilton's jailhouse interview. As much as I dislike her noteriety and feelings of self importance, this one will be one for the books. I myself am intersted how she found "God" after on night in the slammer, I waiting for a good answer on that one.


Went to the dr. yesterday, same ol news. gotta gain weight!! So they upped the amount of "food" I take through my G tube hoping that will help. He says with my amount of activity (read: none) I might be able to gain a pound a week!! Just give me about 2 weeks of the way I ate presurgery and I could pack it on really fast. Problem is I can't eat by mouth, always nauseated.

I didn't take the time to read all the latest posts, so here's hoping all are as well as can be. My thoughts, prayers and love are with everyone. I'd light a candle, but I'd probably burn the house down! So please know, even it there's no candle, the love it there.

Jules
Settig the DVR for Paris' interview

[Jules]

Diana's parents arrive tonight flying in to Dayton...I can't belive how cheap it is to fly in and out of Dayton! Some flights even originate there then make a stop in Cincinnati. a 50 minute drive could save several hundred!

But because they are here, Diana will pick them up at the airport and then they'll probably drive to Zanesville so they're closer to Longaberger Basket Company. I mean really, how many times does one have to see Logaberger's? Every time members of her family come visit, its off to Longaberger!!

Fortuantly, I am unable to go because of all the gear I have to travel with, and I'm not well enough to travel, and far be it for me to ruin the Longaberger experience!

So, tonight and tomorrow its just Pebs, Ethel and me. I doubt if I stray from my routine, except maybe stay down here in the basement so I don't have to carry my IV pole up the stairs. That means Pebbles will sleep with me and Ethel will be quite pissed. But Ethel sleeps with me all the time, so its now Pebs' chance!

I hate that I can't go. Actually Longaberger is quite interesting and every time we go I make a basket, makes me feel creative! But I don't want to chance it by getting sick or something and ruining their time there. Diana has made me promise to call if anything should go wrong with me, if its something serious, I'll call her from the ER and not get her all upset and wanting to come home.

So, Pebs, Ethel and me are going to throw a big party with dog and kitty treats for all their buds....I'll just chaparone.

Hope everyone is having a good night!

[angie99]

I am glad i saw this post. It gave me enough courage to speak up about my condition as well and how it affects my life in all its aspects.

My name is Angie, 24 and I live/lived with C.A.H all of my life.
What is C.A.H you ask?
C.A.H=Congenital Adrenal Hyperplasia

When I was born the doctors thought i was boy. Then they found out i wasn't and so well I got "snipped". I grew up with surgeries and doctor's appointments all of my life. I always did feel different. I've always been attracted to women ever since i was a wee one. But as i got older and wanted to date, it was just so awkward to stand nude in front of someone because "down there" I am different. At times because of C.A.H i get extremely sick and weak, it does bring my self esteem down at times. The medicines don't help either, so many side effects after years of being on them.

I write this because I feel like I need to say something. C.A.H is such rough thing to go through. People didnt have a choice before, they were just snipped or sewed up and put in a pink or blue dress. Now choices are being made and people are happy with themselves.

I learned through years and years of heartache, that I love myself. I love Angie. I am different, but so is everyone. That whatever disability we may have things could be so much worse, that to push on and keep going is absolutely the only way we could all be happy.

Thank you for taking the time to read this.

-angie

http://en.wikipedia.org/wiki/Congeni...al_hyperplasia

[Shyfemmekat]

I am glad i saw this post. It gave me enough courage to speak up about my condition as well and how it affects my life in all its aspects.

My name is Angie, 24 and I live/lived with C.A.H all of my life.
What is C.A.H you ask?
C.A.H=Congenital Adrenal Hyperplasia

When I was born the doctors thought i was boy. Then they found out i wasn't and so well I got "snipped". I grew up with surgeries and doctor's appointments all of my life. I always did feel different. I've always been attracted to women ever since i was a wee one. But as i got older and wanted to date, it was just so awkward to stand nude in front of someone because "down there" I am different. At times because of C.A.H i get extremely sick and weak, it does bring my self esteem down at times. The medicines don't help either, so many side effects after years of being on them.

I write this because I feel like I need to say something. C.A.H is such rough thing to go through. People didnt have a choice before, they were just snipped or sewed up and put in a pink or blue dress. Now choices are being made and people are happy with themselves.

I learned through years and years of heartache, that I love myself. I love Angie. I am different, but so is everyone. That whatever disability we may have things could be so much worse, that to push on and keep going is absolutely the only way we could all be happy.

Thank you for taking the time to read this.

-angie

http://en.wikipedia.org/wiki/Congeni...al_hyperplasia

Welcome to you. I had never heard of this condition before. Thank you for providing a link that tells about it so we can all learn.

You have a great attitude. It seems like so often the only thing we can change when we are sick IS our attitude. A lot of times that is the hardest thing for me and I know others struggle, too.

I am glad that you posted, please come by again and post anytime. There is a lot of good support here.

SFK

[Whispertome]

I am glad i saw this post. It gave me enough courage to speak up about my condition as well and how it affects my life in all its aspects.

My name is Angie, 24 and I live/lived with C.A.H all of my life.
What is C.A.H you ask?
C.A.H=Congenital Adrenal Hyperplasia

When I was born the doctors thought i was boy. Then they found out i wasn't and so well I got "snipped". I grew up with surgeries and doctor's appointments all of my life. I always did feel different. I've always been attracted to women ever since i was a wee one. But as i got older and wanted to date, it was just so awkward to stand nude in front of someone because "down there" I am different. At times because of C.A.H i get extremely sick and weak, it does bring my self esteem down at times. The medicines don't help either, so many side effects after years of being on them.

I write this because I feel like I need to say something. C.A.H is such rough thing to go through. People didnt have a choice before, they were just snipped or sewed up and put in a pink or blue dress. Now choices are being made and people are happy with themselves.

I learned through years and years of heartache, that I love myself. I love Angie. I am different, but so is everyone. That whatever disability we may have things could be so much worse, that to push on and keep going is absolutely the only way we could all be happy.

Thank you for taking the time to read this.

-angie

http://en.wikipedia.org/wiki/Congeni...al_hyperplasia

Hi angie,

Thank you for sharing..

I am so worn out tonight, I thought I would drop in say hello..and post tomorrow..
I am glad that I did. I am going to check out the web site..

We are all indivudals, know you have love and support here

Whisper

[Whispertome]

Hi Everyone,

I just don't understand the side effects of medicines. It is as if you take xyz they you have to take abc to counteract xyz, but you need to take jkl to counteract abc and so on and so forth. It would make so much more sense to me to have a medicine that just changed the dna of a drug to "combat" the disease it is made for. Maybe I am thinking way too much here.

Love and peace,
Andrew

Sounds like you are thinking like a scientist..I know they (docs, drug companies) could make it easier for all of us..but I think that would take away too much money..

I do believe medicine is in for a big change soon..Now if they will share it..I think we all would be tickled..

CHOCOLATE CHIP COOKIE MONSTER!!!!

[Whispertome]

Hey everyone..

Let's see, the doctor told me to know my limits Haven't met them yet. between yesterday and today..I am flat worn out..and I am going to to the couch potato thing and probably fall asleep watching something I enjoy..

Sending love and healing light and prayers to all...

[Gossamer]

Shy, looking forward to the mail The mail to our building runs at least 5 days slower than it should, so hopefully I'll see it soon.

The puppy is lovely. His name is Blue, my dad named him. Apparently there are at least three songs about dogs named Blue, and Brooke's making up more as we speak. lol I should upload a picture. He's a black lab.

In other super fabulous news the housing authority here may have actually, finally, found us a *real* accessible apartment. Fingers crossed!

[Shyfemmekat]

Shy, looking forward to the mail The mail to our building runs at least 5 days slower than it should, so hopefully I'll see it soon.

The puppy is lovely. His name is Blue, my dad named him. Apparently there are at least three songs about dogs named Blue, and Brooke's making up more as we speak. lol I should upload a picture. He's a black lab.

In other super fabulous news the housing authority here may have actually, finally, found us a *real* accessible apartment. Fingers crossed!

There is some mail going out tomorrow. I overdid it around here so now it's time for less vigorous pursuits, LOL.

Awww, can't wait to see a pic of baby Blue! Furbabies rock.

I know for me I can get by without handicap accessibility for NOW, but if I have a flareup, forget it. So when it comes time for house hunting in earnest, we are going to look for a 1 or 1-1/2 story with all the pertinent rooms on the first floor. Hope it all comes together for you!

Hugs,
SFK

[Jules]

Good to see everyone feeling kind of "perky." I may have reached a cross roads. Usually I'm content to either sit at the computer all day, or watch TV laying on the couch. Today I actually was BORED!!!! Diana and her folks have'nt arrive yet...poor Diana, she's so geographically challaged. She called about 2 hour ago and said "I'm at a turn off that says I71 Cleveland or I 71 Columbus.....I practically yelled at her...head to Columbus!!! She must have missed the turn off for the Columbus bypass. but that was 3 hours ago, Columbus is only 1 1/2 hours away....why do I have this feeling in the pit of my stomach that they are now arriving in Cleveland...*sigh* poor thing. I keep waiting to see the shadow of her car cross the glass windows in the basement, but alas, no shadows.

Gossamer, hurry and post some picks of Blue, I be that's one beautiful dog...I also remember songs about a dog named Blue...is this an age thing?

I think I'm slowly turning a corner. Not taking it on 2 wheels, but turning non the less!.
I actually put something in my stomach through my mouth, not a tube, the nausea seems to be subsiding, or maybe its the new med. What ever it may be, I didn't really need to nap today and I think I might have had "some" energy. Here's hoping tomorrow goes the same way.

Well Diana and her folks have arrived none worse for the wear, so I'm headed upstairs to socialize and spend some time with them

Have a good evening all!

Jules
Looking for more corners

[Woodie69]

Hi Everyone,

I already responded earlier today, but for some reason my post didn't take. Go figure. I am really not myself. Plus giving more blood up really is draining. I was so nervous about it because the first time I went I was given some lame ass excuse why I couldn't have a butterfly needle when taking it out of my hand. This go round I got the butterfly needle along with another tech. Talk about a pure miracle. That was about all that was going my way today. It is mercury in the retrog. thing. I sooooo believe it.

Did anyone watch Paris Hilton last night? I did. She is pure Hollywood (fake). I would so love to see her in one of our shoes for a day. Reality is so different for so many of us. That is about all I got out of it. I still think she is an alcoholic and did take drugs. The ADHD med she is claims to be on...I think we all are on it, but none of us have 3 DUI's or DWI's on our record. Sheesh. Give me a break. And the bit on doing charity work...she is no Mother Teresa. Please. I don't even want to go down that street with her.

Gossamer,

Congratulations on Blue! Keep us posted on how your housing situation goes. My fingers are crossed, and you are getting all sorts of prayers and candles lit for you!

Jules,

I was thinking about what I could possible come up with for a recommendation for you to eat or drink without using your feeding tube. What about an old fashion coke soda? I know that Friendly's still makes them, but has it listed under another name. My thinking is that the coke syrup may settle your stomach somewhat, plus give you some calories. Another idea is just plain old fashioned chix noodle soup broth. Nothing in it, but broth.

I can understand about being bored. I sure am too. Now that my wrist/hand are healing, I am really at a loss of what to do with myself. I am so grateful to have my pets. I would surely be lost without them. Plus being able to come online here does help.

Angie99,

Hi and Welcome to ! Glad you are here with us. You will find nothing but love and support here on this thread. We talk about everything and anything. So please feel free to just post about whatever it is you want too. And vent about whatever is bothering you. We all vent at some point. Believe you me.

Have fun and enjoy yourself!

Whispertome,

You are a giant choc. chip cookie!

Shy,

You rock as always!


I hope everyone is safe, and has a good evening.

Love and peace,
Andrew

[Jules]

Angie, I'm sorry for not acknowleging your post earlier. Welcome to the site, and to this particular thread chock full of amazing people. Thank you for the link, so that I may better understand you and your condition.

again, welcome.

[Sweetstonefemme]

BMW..i see yoou down there on the bottom of the page..lol

[BlueMoonWolf]

BMW..i see yoou down there on the bottom of the page..lol

LOL i just park myself here because Y'all talk to much some nights it just easier LOL

[Shyfemmekat]

Good to see everyone feeling kind of "perky." I may have reached a cross roads. Usually I'm content to either sit at the computer all day, or watch TV laying on the couch. Today I actually was BORED!!!! Diana and her folks have'nt arrive yet...poor Diana, she's so geographically challaged. She called about 2 hour ago and said "I'm at a turn off that says I71 Cleveland or I 71 Columbus.....I practically yelled at her...head to Columbus!!! She must have missed the turn off for the Columbus bypass. but that was 3 hours ago, Columbus is only 1 1/2 hours away....why do I have this feeling in the pit of my stomach that they are now arriving in Cleveland...*sigh* poor thing. I keep waiting to see the shadow of her car cross the glass windows in the basement, but alas, no shadows.

Gossamer, hurry and post some picks of Blue, I be that's one beautiful dog...I also remember songs about a dog named Blue...is this an age thing?

I think I'm slowly turning a corner. Not taking it on 2 wheels, but turning non the less!.
I actually put something in my stomach through my mouth, not a tube, the nausea seems to be subsiding, or maybe its the new med. What ever it may be, I didn't really need to nap today and I think I might have had "some" energy. Here's hoping tomorrow goes the same way.

Well Diana and her folks have arrived none worse for the wear, so I'm headed upstairs to socialize and spend some time with them

Have a good evening all!

Jules
Looking for more corners

I am glad you are feeling better, that is wonderful!

Glad Diana made it home with her folks OK. Give my best to her, Queen Ethel and Perfect Pebs the Diva Poodle.

SFK

[Shyfemmekat]

Hi Andrew,

Good to hear from you. I am glad yor wrist/hand are healing. Soon you'll feel much better.

My primary care doctor's nurse uses a butterfly needle to take my blood every three months but she takes it out of my left arm. I love that thing, hurts way less.

My DSL was acting up earlier today and I thought for a brief period that I might be without internet and I was getting crabby. RAWRRRRR! (scary ShyFemmeKat face) I don't always want to be online for a long time but I sure like having the option if the mood hits, LOL.

Give my best to dear Rosie, of course, and hug the furkids.

Hugs,
SFK

[Shyfemmekat]

BMW..i see yoou down there on the bottom of the page..lol

You're funny, that made me laugh. How have you been?

SFK

[Jules]

For the information. I had a really nifty post in response to your advice and it got sucked into the vortex of internet land. What I wanted to do was thank you for

I was thinking about what I could possible come up with for a recommendation for you to eat or drink without using your feeding tube. What about an old fashion coke soda? I know that Friendly's

But, alas, it disappeared. Coke soda sounds good, but I can't do carbonation. Especially with this ulcer. But, I guess I've always been strange because I love flat coke, have ever since I was a budding little butch.

Today has been an eating extravaganza for me, a little oatmeal, some miniature Oreos, 1/2 grilled cheese sandwich, and I just now polished off 1/2 ham salad sandwich....that's probably more than I've eaten in the last 2 weeks....hopefully I can keep up the momentum and keep eating.

Tomorrow we start going through boxes getting ready for the garage sale next week. Having Diana's parents here is a God send, we'll be able to get a lot done, maybe even get the house on the market within the next 2 weeks.....hopefully all of this is the beginning of positive things happening in our lives....I'm going to at least act like it is!!

Sweet Dreams everyone!

[Shyfemmekat]

Hey everyone..

Let's see, the doctor told me to know my limits Haven't met them yet. between yesterday and today..I am flat worn out..and I am going to to the couch potato thing and probably fall asleep watching something I enjoy..

Sending love and healing light and prayers to all...

Hey, I know you!

Hope you got rested up. I heard you about the medication, I am going to break down and actually start using my reminder pack thingie even though it makes me feel like a dork.

Who's got chocolate chip cookies?!?!?! I want some!

SFK

[Shyfemmekat]

For the information. I had a really nifty post in response to your advice and it got sucked into the vortex of internet land. What I wanted to do was thank you for
But, alas, it disappeared. Coke soda sounds good, but I can't do carbonation. Especially with this ulcer. But, I guess I've always been strange because I love flat coke, have ever since I was a budding little butch.

Today has been an eating extravaganza for me, a little oatmeal, some miniature Oreos, 1/2 grilled cheese sandwich, and I just now polished off 1/2 ham salad sandwich....that's probably more than I've eaten in the last 2 weeks....hopefully I can keep up the momentum and keep eating.

Tomorrow we start going through boxes getting ready for the garage sale next week. Having Diana's parents here is a God send, we'll be able to get a lot done, maybe even get the house on the market within the next 2 weeks.....hopefully all of this is the beginning of positive things happening in our lives....I'm going to at least act like it is!!

Sweet Dreams everyone!

I was going to let the part of your post about being strange go right on by... but that's why you fit in here. (So do I, LOL).

Get your food on, Jules, that's awesome!

Something I learned in AA/NA that I have thought about this week is, "Acting as if", and "Bring the body and the mind will follow". That's the one I struggle with, because I have good intentions but I never get things done. Thanks for being a God breeze for me on that.

All right, gotta get in the shower, Rhon wil be home soon and I have to do my shot still. Aaaarghhhhhh.

Nightsy Bye-
SFK

[Whispertome]

Hi Everyone,

I already responded earlier today, but for some reason my post didn't take. Go figure. I am really not myself. Plus giving more blood up really is draining. I was so nervous about it because the first time I went I was given some lame ass excuse why I couldn't have a butterfly needle when taking it out of my hand. This go round I got the butterfly needle along with another tech. Talk about a pure miracle. That was about all that was going my way today. It is mercury in the retrog. thing. I sooooo believe it.

Did anyone watch Paris Hilton last night? I did. She is pure Hollywood (fake). I would so love to see her in one of our shoes for a day. Reality is so different for so many of us. That is about all I got out of it. I still think she is an alcoholic and did take drugs. The ADHD med she is claims to be on...I think we all are on it, but none of us have 3 DUI's or DWI's on our record. Sheesh. Give me a break. And the bit on doing charity work...she is no Mother Teresa. Please. I don't even want to go down that street with her.


Whispertome,

You are a giant choc. chip cookie!

Me?????? lol..I can say that is a sweet thing for you to say..OMG, these pain pills really have me loopy, well, more loopy than usual for me