SHY?
Where are you, Baby?
Peregrine
SHY?
Where are you, Baby?
Here I Yam, LOL
Originally Posted by Peregrine Magic
SHY?
Where are you, Baby?
Heh heh back later to post, been running errands, filing assistance paperwork, doctor appointments, etc. You have been in my prayers, of course. WIll call you this Sunday sometime. Hugs!
SFK
Subtle as a hand grenade
"Sweet like candy to my soul, sweet you rock and sweet you roll.."
hi peoples....have not been around much. a quick update...i have moved into my own place !! not so sure about living alone as it seems i have started to have seisure from the brain injury. spent the night at the er friday night. they hooked up oxygen and an iv and knocked me out for a few hours. when i awoke i felt much better. i am getting a pca in the next week or so, so i am sure that will help a lot. gee i just hope i like her !! i have been going to my girlfriends house on the weekends, but poor dear has been sick so i have not been able to these last two weekends. i have started tbi therapy and am going twice a week to speech therapy and ocupational too, as well as my usual weekly head threpy.I miss everyone here and wish the best and hope all is well......
Thou shalt love your vagina deeply and with reverence. It is the doorway to heaven. It is the place souls come from heaven to earth .Whether you choose to give birth to a soul or an idea, rejoice in the sacred essence of being a woman
Hey guys!
Just wanted to check in and say hello. I am also struggling with health stuff still, but its about the journey, right? I'm having a difficult time finding a doc that is willing to entertain the diagnosis that seems to make the most sense. On another listserve, someone talked about it in analogy to buying a yellow corvette. You go looking for a yellow corvette and go to a specific dealer. They tell you they have a red one or a black one, but no yellow. Do you stay and buy something you don't want or do you go to another dealer? ( I personally would go for ANY corvette at this time...but that's another thread...)
Please take care of each other!! Thanks for the venting time!!
~Psalm 62: 5-7
Ya know, Peregrine...I'm beginning to think there is no such thing as "cancer free"...it's one of those things you have to battle again and again....as long as ya can.
You just have to take the battles one at a time *and...of course..be grateful that you have that time to do battle.*
I got burnt on religion long ago...when the bishop of my father's church told me that God didn't believe in *cuz being queer*.....I'm thinking though, that it isn't a matter of some diety believing or disbelieving in me....I"m thinking that dieties just don't have a personal interest in what happens to individuals.....I"m thinking they only take care of the big picture...and give ya the necessary tools...and the extra folks...to take care of your emotional needs/support on your own.....For instance...this thread is here..and it provides a mountain of support to lean on...and no dietal intervention was necessary to start it.
My thanx to the thread starter.
Thread Executioner
Howdy
Hey hellboi,
Good to hear from you again!
I liked what you said about taking the battles one at a time. My dad was much of the same mind, and he was surely a practitioner, what with as many health problems as he had.
Without turning this into a religious discussion, I will say that as the OP or whatever you call it (I started this ball of thread rolling) that the idea to do so came from God. I felt like I could not possibly be the only one who felt messed up by illness and disability. I felt frustrated and powerless but I wanted to DO something. Now normally I am not one to be outgoing. Really. But I felt led by God to kick this into gear so here we are. And I am so glad I did, because I have met some wonderful people here who have blessed me with love, laughter, support and knowledge this last year and some months, including yourself! I am glad that I was willing to be pushed outside my comfort zone and reach out in my pain and confusion, to be willing to be used for (my understanding of) God. Scary at the time but it's all good now!
Hope all are well, I have been busy with non-online stuff and now Wednesday I am going to a kind of demonstration with my cute lil' rolling walker to stand up (sit down? ROFLMAO) against the constitutional amendment to ban same-sex marriage. Info here:
Indiana Equality : http://eqfed.org/ie/notice-descripti..._id=6791676&r=
WOO HOO! We will be singing "We Shall Overcome" and I am really hoping not to get arrested. I don't make toliet paper curtains for anyone but Rhon.
I wish you all a lovely day!
ShyFemmeKat
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
Hmmmmm....let me see....you just give me a few minutes...and I'll figure out a way ta smuggle some freshly ground coffee beans into you, if the need arises. LOL *I think I could put some in the top of my prosthetic leg....LOL*
Thread Executioner
I guess that coffee would give you a leg up on your day...
I always knew my peeps would come through in a crisis. Let's hope it doesn't come to that, ROFLMAO.
Slainte'
SFK
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
Greetings everyone!
I just got home today after another week's stay in the hospital because of the stupid Hickman Catheter being infected...temp shot up to 104 last Tuesday night, and here I am all alone...well, Ethel the cat was with me). The spousal equivilant had gone to Wichita to visit family and she took Pebbles with her, so it was just me, Ethel and my fever.
I called the doctor and they called the hospital to admit me as soon as I got there, which happened without too much delay. That in itself is a miracle to me! So I've spent nearly the last 7 days sweating, chilling, burning up until finally yesrday they took out the damn Hickman. I did want to express to the Doctor who took it out that he missed a few spots with the lidocain used to deaden the area around the catheter, but I was too busy yelling as he cut away at not dead skin!
This morning they came in and put in a pic line, since I still need to gain weight. Hopefully this one won't get infected! After a weeks/months on the TPN they are going to in and revise the top portion of my surgery (just the stomach) and leave the bottom "bypass" portion alone. So........I feel like I should own University Hospital now, I sure have shelled out enough money being their "guest!"
I hope this finds everone well, you all were in my thoughts while I was in the hospital and kept telling the SE that I need a lap top if I'm going to continue to do this, so I can keep in touch!
Sending everyone peceful, healing thoughts
Jules
Where are we going and why am I in this handbasket?
http://www.myspace.com/vettejules
Even more photos: http://www.butch-femme.com/galleries...er=688&thumb=1
Woodie's Surgery
As some of you know, our Woodie just had surgery done for those hand, etc., problems he has been having. He is back home now but it sounds like there will be a lengthy recovery/rehabilitation process in the weeks and months ahead. If you know his snail mail address or email address let's send him a card/letter shower and keep him in your thoughts as he gets better.
SFK
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
We Are Everywhere, LOL
Well, at least there are a lot more of us than folks thought, eh, DAYWALKER? Very interesting article about the prevalence of MS, link here:
Multiple Sclerosis Rates Up 50%
Review Tracking Neurological Disorders Shows 1 in 1,000 Americans Have Multiple Sclerosis
http://drugstore.webmd.com/content/a...=RSS_DRUGSTORE
Montel has said that for quite some time, that the figures were low, and I tend to agree. It's such a sneaky disease sometimes that people go for years without being properly diagnosed.
SFK
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
Just a quick post....
Had my biopsy today, it went all right, uncomfortable but all right. I will have the results in about a week. I finally got an impacted wisdom tooth out.. one little problem.. i got an infection so for the past couple of days i have been sick with fevers and stuff.
So all in all from cheekbones to collar bones I hurt but i am resting and taking my meds on schedule every 4, 6 and 12 hours
BMW
Femme Dating Rule ONE: If they deny your existence... deny them your presence.
How to keep the Femme Mystic Alive Rule ONE: Shut the damn bathroom door.
Sending healing thoughts your way BlueMoonWolf and for favorable results on your biopsy. Since that is the field I work in, I have to chime in and say that it doesn't take a week to get results...usually the results can be had the following day, at the latest, the day after. A lot depends whether the hospital/clinic where you had the procedure has their own anatomic pathology department, but even then it shouldn't take a week.
I guess doctors tell everyone that. I had a lymph node biopsy several months ago and I had the spousal equivilant (we're both Histothechnologists) cut extra slides and bring them to where I work, and I had the results wayyyy before the surgeon did...lol. Helps to have some on "the inside."
I'm sending positive thoughts and prayers for a good outcome for you.
Jules
Where are we going and why am I in this handbasket?
http://www.myspace.com/vettejules
Even more photos: http://www.butch-femme.com/galleries...er=688&thumb=1
hope you are well too,,,,,,,,
Well, it's good to hear from you. I was wondering how you were. At least now that biopsy is over with. Take good care of you as you recuperate, maybe watch a funny movie and snuggle down in some warm blankets!
SFK
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
I will never forget having my Hickman taken out. Even though the thing had been implanted by a surgeon under a general anesthetic, a nurse on the bone marrow ward took it out in a strangely casual way. She bent over my bed with the external part of the Hickman in her hand, snatched it out of my chest suddenly, and then put a full sized sandbag on my chest.There must have been gauze or some kind of bandaging involved, but it’s the sudden pull and the random sandbag I remember.
Damn I hated that thing.
If anybody’s sent you Andrew’s email or snail mail addy, would you please send it to me as well? I’ve got him in the light, but I’d like to send him an email or three dimensional card as well.
Waiting for cancer test results is so stressful. I think it stinks that people ever have to wait unnecessarily. I am not an insider like Jules, but I have harassed docs into giving me results much earlier. In fact when one dermatologist at my HMO told me that it would take “a week or two” to get a mole biopsy back-- when I was already a nervous survivor of another kind of cancer-- I resolved to never see her again and just called my onco for the results a couple of days later.
Benign blessings...
Peregrine
Funny you should say that.. today I called and got the 4 extra movie channels I have been wanting to get. While I was enjoying the whole discribed L word episode thing I will be able to watch it this sunday! YAYWell, it's good to hear from you. I was wondering how you were. At least now that biopsy is over with. Take good care of you as you recuperate, maybe watch a funny movie and snuggle down in some warm blankets!
SFK
Oh and i am headed back to the dentist tomorrow to get this infection looked at again. I am a bit tired of looking like i got socked in the jaw.
*hugs to you*
BMW
Femme Dating Rule ONE: If they deny your existence... deny them your presence.
How to keep the Femme Mystic Alive Rule ONE: Shut the damn bathroom door.
not good news....
Apparently the ulcer that has had me in and out of the hospital the last month has grown and shows no signs of healing. The verdict is yet another revision: go in and remove the portion of small bowel and pouch that are affected by the ulcer and basically start from square one (just like it was my first gastric bypass), starting out with liquids, then pureed, then soft foods until I can tolerate solids and also to avoid yet another ucler to form.
I did not give them a decision today as I really have to ponder this, yet another surgery, and the affect it will have not only on me, but the Spousal Equivilant as well. I know that she'll be there with me through thick and thin (pun intended), but gosh, 3 surgeries in 3 years has got to just as hard on her as it is on me. Plus, there's no guarentee that I won't develop yet another ulcer after all is said and done.
I'm in a quandry and have a couple of weeks to think about this before he needs a decision. Needless to say, I'm scared as hell, these surgeries are taking their toll ...I guess I just wanted to vent a little and maybe, just maybe, someone might have some answers, or at least a pep talk (pom poms optional).
Jules
Where are we going and why am I in this handbasket?
http://www.myspace.com/vettejules
Even more photos: http://www.butch-femme.com/galleries...er=688&thumb=1
Apparently the ulcer that has had me in and out of the hospital the last month has grown and shows no signs of healing. The verdict is yet another revision: go in and remove the portion of small bowel and pouch that are affected by the ulcer and basically start from square one (just like it was my first gastric bypass), starting out with liquids, then pureed, then soft foods until I can tolerate solids and also to avoid yet another ucler to form.
I did not give them a decision today as I really have to ponder this, yet another surgery, and the affect it will have not only on me, but the Spousal Equivilant as well. I know that she'll be there with me through thick and thin (pun intended), but gosh, 3 surgeries in 3 years has got to just as hard on her as it is on me. Plus, there's no guarentee that I won't develop yet another ulcer after all is said and done.
I'm in a quandry and have a couple of weeks to think about this before he needs a decision. Needless to say, I'm scared as hell, these surgeries are taking their toll ...I guess I just wanted to vent a little and maybe, just maybe, someone might have some answers, or at least a pep talk (pom poms optional).
Jules
Different thing and different situations but thought I'd let you know i had 3 surgeries in 4 years and have now been surgery free for almost 3 years! My hope is to make it through my 40's surgery free!
[SIGPIC][/SIGPIC]Channeling Super Woo
First of all, thanks for your understanding about the pom-poms. Speaking of multiple surgeries, mine are not what they once were.
I just have the old tried and true advice: Get another opinion.
You want to be confident you're doing the right thing. If the second doc agrees, there you go. If the second doc doesn't agree, then you know the situation bears further examination. Either way, it's worth the extra hassle...
Peregrine
Thanks Peregrine, that's exactly what I'm going to do. One of my co-workers has had this surgery without any complications and she wants me to see her doc for a second opinion. She (and I agree) thinks this group of doctors I have been seeing are being a bit cavalier about my situation and thinks this surgery is basically so they can cover their a**.
So tomorrow I will be contacting my insurance to see if they will cover a second opinion and go from there.
This whole situation has me at my wit's end and more depressed than ever....but I am still trying to remain positive in light of these developments.
Where are we going and why am I in this handbasket?
http://www.myspace.com/vettejules
Even more photos: http://www.butch-femme.com/galleries...er=688&thumb=1
Some Good Advice
Apparently the ulcer that has had me in and out of the hospital the last month has grown and shows no signs of healing. The verdict is yet another revision: go in and remove the portion of small bowel and pouch that are affected by the ulcer and basically start from square one (just like it was my first gastric bypass), starting out with liquids, then pureed, then soft foods until I can tolerate solids and also to avoid yet another ucler to form.
I did not give them a decision today as I really have to ponder this, yet another surgery, and the affect it will have not only on me, but the Spousal Equivilant as well. I know that she'll be there with me through thick and thin (pun intended), but gosh, 3 surgeries in 3 years has got to just as hard on her as it is on me. Plus, there's no guarentee that I won't develop yet another ulcer after all is said and done.
I'm in a quandry and have a couple of weeks to think about this before he needs a decision. Needless to say, I'm scared as hell, these surgeries are taking their toll ...I guess I just wanted to vent a little and maybe, just maybe, someone might have some answers, or at least a pep talk (pom poms optional).
Jules
I agree with Peregrine. Get a second opinion. Surgery is nothing to take lightly (gentle pun intended, yes?)
I don't have pom-poms, but I am waving at the computer.Go team Jules, WOO!
I hope you are all having a good night. I seem to have caught a cold so I have the sinus headache runny nose thing going. The MS shot I took at 1:30PM is in full swing so I have the heat up to like 74 (I usually keep it about 69), I have my hemp hat on and am wrapped up in a blanket. I AM STILL COLD! GAH!I can't take any more Aleve for another 3 hours so I am shaking and freezing to death. Too sick to sleep and so bored. I have managed to do laundry.
Andrew, sweetie, it was SO good to finally talk to you! What is so funny is you sound like I thought you would. Now isn't that wild?!
Miami, it was sure good to hear from you, too. Hope you will be feeling better tomorrow.
Any bored peoples feel free to call me tonight. I am too sick to sleep and too distracted to watch movies or listen to my 7 Habits CD's.
ShyFemmeKat
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
Shy, I hope you shake the cold quickly and thank you so much for your support...thanks to everyone for their support....this situation has quickly turned into a major bout of depression for me, I am just now getting out of bed 8:45 PM from going to bed last night at 9....gotta shake this!!
Where are we going and why am I in this handbasket?
http://www.myspace.com/vettejules
Even more photos: http://www.butch-femme.com/galleries...er=688&thumb=1
Jules,
I can understand. My situation is a little different, but not being certain of what to do in a situation that involves surgery and handing control over to someone else is TOUGH. I can second the depression as well. For me, the demon has been fear. Fear that the big C will keep me single....that I won't see my son grow up.....or that I won't be strong enough to take it all.
In thinking about your situation, have you researched if there are doctors that specialize in reversal of gastric bypass? I don't mean to be ignorant if this is the wrong term to use, but maybe its needing to look past your geographic borders. I have an appt lined up with some docs in Louisiana should these tests come back with a mass. Would the specialist need to work more with malabsorption issues versus bariatric surgery? I would love to help and am a fanatic about researching things out. I'll see what I can find and come back.....In the meantime, don't lose hope!
~Psalm 62: 5-7
Kellie, oh yes, I have researched this until my little brain is overflowing with information. During the meeting with the surgeon I did question the option of reversing the bypass completely. Although he did not say this wasn't an option, he basically nixed the idea stating Ii would be facing the same possible results as with a revision, plus a great chance of "leaking" around suture lines.
On Monday I will begin the task of seeking a second opinion and finding out what ALL the options are. One of them is just to go as I am now, not having another surgery and hoping that, in time, the ulcer could heal. But, the odds of it healing are pretty slim as I'm doing all I can now (meds, diet, etc.) to help it heal. Time will tell, and hopefully in the next two weeks I can make an informed decision about the future....
Where are we going and why am I in this handbasket?
http://www.myspace.com/vettejules
Even more photos: http://www.butch-femme.com/galleries...er=688&thumb=1
Over the weekend of not being able to keep anything down, running a low grade temp (probably left over from the staph infection in the Hickman), and generally having absolutly no energy, the Spousal Equivilant and I made a decision:
On Monday I will call the surgeon and tell them I want the surgery RIGHT NOW! I can't put my life, or job for that matter, on hold for a month while they hope I might gain weight. The TPN is just enough to sustain me, not add pounds. Since I can't keep food down, what's the point of waiting a month. So, I'll keep folks posted about the surgery and when it will happen. The sooner the better in my mind. The stress of waiting is just adding to the ulcer.
Where are we going and why am I in this handbasket?
http://www.myspace.com/vettejules
Even more photos: http://www.butch-femme.com/galleries...er=688&thumb=1
I think sometimes there is a great relief even just making SOME kind of a decision. Know you are in our thoughts and prayers, of course, and check your email.
SFK
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
Jules, my best wishes for feeling better ASAP. I'm praying for your health and for the intuition and skill of your doctors. If the doctors are covering their asses (a possibility you raised earlier) may they do so through your being completely healed.
ummm okay, I am trying not to freak out.. I know that the Dr was going to call me after the biopsy because we knew it was surgery time... the Dr that did the biospy said about a week to a week and a half for results... I got called tonight to come in and talk with my doc... less than a week. Early results is normally a good thing... early results with biopsy is um freaking my ass out..... i think i am going to go hide under my quilt.
Femme Dating Rule ONE: If they deny your existence... deny them your presence.
How to keep the Femme Mystic Alive Rule ONE: Shut the damn bathroom door.
Sending you a nice warm fuzzy blanket and a passle of good thoughts, BMW. Keep us posted, okay?
Hugs,
SFK
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
Something Afoot
Went to the podiatrist today as planned. My foot is not broken but I have something called a neuroma that when I walk the bones in my feet press on it. So the doctor gave me a cortisone shot in it and I go back in two weeks. If it's not better then, I guess we do another shot. He also gave me a temporary heel lift as my right leg apparently is a bit shorter than the left. I feel weird walking now and my back hurts. I bet it will feel much better as I get used to it.
It is very cold here and I hope you are warm!
ShyFemmeKat
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
BMW, are you OK?
How about you, Jules?
Shy, I hope that cortisone is working!
I am a stunned bunny today. Yesterday my sister-in-law, my brother Bob's widow, passed away unexpectedly. She felt ill, stretched out on the couch, and never got up. She was in her mid forties, and leaves behind three daughters. It does go to show how life is unpredictable and death touches everyone. But we already knew that.
<shaking head>
PS-- Outlaw, thanks for your PM and scary Crohn's story to pass along to my daughter. Her intestine turned out to be only partially blocked, so they are trying prednizone and imuran.
BMW, are you OK?
How about you, Jules?
Shy, I hope that cortisone is working!
I am a stunned bunny today. Yesterday my sister-in-law, my brother Bob's widow, passed away unexpectedly. She felt ill, stretched out on the couch, and never got up. She was in her early forties, and leaves behind three daughters. It does go to show how life is unpredictable and death touches everyone. But we already knew that.
<shaking head>
PS-- Outlaw, thanks for your PM and scary Crohn's story to pass along to my daughter. Her intestine turned out to be only partially blocked, so they are trying prednizone and imuran.
BMW, are you OK?
How about you, Jules?
Shy, I hope that cortisone is working!
I am a stunned bunny today. Yesterday my sister-in-law, my brother Bob's widow, passed away unexpectedly. She felt ill, stretched out on the couch, and never got up. She was in her mid forties, and leaves behind three daughters. It does go to show how life is unpredictable and death touches everyone. But we already knew that.
<shaking head>
PS-- Outlaw, thanks for your PM and scary Crohn's story to pass along to my daughter. Her intestine turned out to be only partially blocked, so they are trying prednizone and imuran.
BMW- Keeping you in prayer....Any news??
Shy-Too bad the heel lifts just don't do anything for us the way heels would??? I hope your back is feeling better and sorry to hear about the neuroma....
Peregrine- Sorry to hear about your friend. Life (and death) can be quite sudden. My condolances......
Jules-Any news on your front? You've been on my mind and I hope all is going well with arranging surgery. Don't let the turkeys get ya' down!!
I had a total of 10 biopsies taken yesterday. While the joy juice they give you when you are getting scoped is a lot of fun, the prep for those bad boys was horrible!!<-----This was lionandlamb most of Monday night. I still don't have results from the CT scan done Friday and am starting to feel a bit depressed at this point too. I ask myself "What is the point anyway?"
~Psalm 62: 5-7
Peregrine
Huggles to Peregrine
Peregrine
Who cares? Just glad to hear from you, sweetie. Know that you are in my prayers. I'll call you this weekend.
SFK
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
Yes, It's Thursday Again
So since she had no work this AM we got a pizza and then I went to bed. Have slept off the worst of it I think and so I'll be back on later. BMW, you've been very much on my mind and you know we all think you're the bomb.
Kellie, have Riley give you several hugs from us. Rhon was asking about you at lunchtime, so keep us posted when you get time
Jules, what's the word?
OD, hee hee did you get my vmail?
SFK
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
*slides in and does a happy dance with everyone* the lumps are just lumps and nothing more... *does some more happy dance*BMW- Keeping you in prayer....Any news??
[
I am still going for surgery anyways though because they still need to come out. I am also going to a nerologist and a different Rhumy. So more Dr's appointments while I am waiting for the surgery, but no firm date yet on the surgery.
I am just relieved to know that the lumps are not cancerous and we just have to worry about getting them out of my neck a much easier thing to worry about.
Femme Dating Rule ONE: If they deny your existence... deny them your presence.
How to keep the Femme Mystic Alive Rule ONE: Shut the damn bathroom door.
Yay!
I am so glad. So glad!
SFK
Subtle as a hand grenade"Sweet like candy to my soul, sweet you rock and sweet you roll.."
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