Physical Disability & Self-Esteem: Life As It Is Now, Coming To Terms, Rising Above

[PrimoKnight65]

Thank you so much Star

{{Anne}}, much light and healing be yours, your family's and your mom most especially. I had a friend who went through this. She is alive and well today. Mastectomy was first then chemo. It was her second go round, too. She is almost 5 years free of cancer.I hold out that miracle for your mom, too. If and when you are afraid and feel as if you will not be able to hold that miracle out there for her or is she does, I will. I know this may seem strange coming from someone you do not know, but it is sincere and I want nothing from you. It is a gift. Me? I am 13 years cancer free in June. Someone else held out the miracle for me when I could not do it or see any end to it in sight. This is my way of paying that forward.

Blessings be yours and also anyone else who needs them.

[StarFire]

Thank you so much Star

You are very welcome!

[BlueMoonWolf]

hiya Lady Wu,

yep some clothing just never goes out.. like the little black dress, side track my little black dress is a wrap dress I made years ago before wrap dresses came back into fashion. Tailors are a lot cheaper than people think at times but remember if you are going up or down 3 sizes That is when the $$ starts to go up big time. At that point you aren't taking in, you are re working the garment.

The pants i love so much are just a straight leg and really rather plain but that is what keeps them in style. Mom (single mom on a budget) taught us we could only have 3 items of trendy clothing. Our family is also big on trading clothes. I have a box full of clothes right now waiting on tea with my cousin for her to take to the next branch in the family.

K gotta correct myself. What I ment to say was... going up or down 3 sizes is a reasonable price for the most part. When you go outside those 3 sizes that is when the price starts to go up because you will need to re work the garment instead of just taking in or letting out. Darts need to be moved, pockets need to be moved.. even buttons may need to be re worked as well.

good part about coming in the thread close to bed time, I can type more since regular pain meds are already on board. bad part.... brain is already in bed and fingers are on autopilot.

Blue

[Shyfemmekat]

{{Anne}}, much light and healing be yours, your family's and your mom most especially. I had a friend who went through this. She is alive and well today. Mastectomy was first then chemo. It was her second go round, too. She is almost 5 years free of cancer.I hold out that miracle for your mom, too. If and when you are afraid and feel as if you will not be able to hold that miracle out there for her or if she does, I will. I know this may seem strange coming from someone you do not know, but it is sincere and I want nothing from you. It is a gift. Me? I am 13 years cancer free in June. Someone else held out the miracle for me when I could not do it or see any end to it in sight. This is my way of paying that forward.

Blessings be yours and also anyone else who needs them.

I can't rep you anymore right now, but please know the thought was there.

[Shyfemmekat]

umm Honey... i have lost about 5-6 clothing sizes... i really think you are going to want to bump up the new work out clothes.. trust me!!

at about 20 lbs lost you will have already lost one clothing size... go down another 10 and things start to fall off if you breathe wrong... this is not conducive to working out if your pants AND undies are around your ankles so you are hobbled... well it does but I don't think you mean that kind of workout. OR work out naked.

oh yeah that's the other thing... at least for me is that I would sacrifice a tofu effigy for bras and panties that would fit for more than a month without sliding the hell off! I would definately add new bras and panties to the treats section. you will need them.

Way back when I worked in a women's clothing store that carried sizes 4-28. there were a few ladies that were part of a work out group would come in to try on clothes. Every time they came in and needed a smaller size, I would ask them to say those sweet little words "Miss? I need a smaller size." and then we all clapped and cheered. Maybe if you are having a bad week plan a little window shopping/encouragement trip. Saying that they needed a smaller size helped encourage them almost as much as counting lbs and inches.

keep going! We all believe in you!


and ps don't ask me about losing the weight i have. it is a direct result of getting off a bad med combo, getting on a good med combo including anti seizure meds that do tend to suppress appetite, and having a stomach that putting anything into it is like kicking a 50 year old live grenade... some times it blows up and sometimes it doesn't

I am like a lot of people I know who have struggled with losing weight. I think I have about 5 different sizes in my closet. I also found a great sale last year and stocked up on 3 sets of these cute little T-shirts with matching capris. Like $12 for both pieces, I think. They don't quite fit yet but I'm thinking March? Going to see what else I can find on there later this week and maybe get the next size down as I get money. I went window shopping online this morning, LOL.

That is really cool that you did that. A lot of people don't get what a big deal those kinds of things are. Thanks for all the positive encouragement. I can sure use it.

Tofu effigy? I wanna see....

I'm hoping to meet my mini-goal by Feb. 13. I've lost 16 already.

I know Topamax can make you lose weight like that. I was kidding my stepmother one day and said, "Boy, I wish they would put me on that one." Glad your meds are better now.

[treesx2]

I know Topamax can make you lose weight like that. I was kidding my stepmother one day and said, "Boy, I wish they would put me on that one." Glad your meds are better now.

After I lost a hundred and three pounds, (diet and exercise due to a heart issue) The Dr. introduced me to topamax for migraines. It is said to be a combination drug, meaning it works for a couple different things. Anyhow, while I never had another migraine again.....I also didn't loose any additional weight. It does not supress the appetite on everyone.

It is extremely expensive....even in generic form......and yes, it did control the migraines, but it is a BRUTAL medication. (many people call it stupidmax) Articulation was so difficult for me. I've been off of it since July, and an Finally able to speak closer to normal.

Now, having said all of this. I'd still take topamax again in heart beat, because IT DOES WORK! Just not sure about the weight loss thing being an absolute. I haven't gained any weight since I stopped taking it either.

It is soon to be Feburary. We've got most of this winter stuff behind us. Hope all is well.

[StarFire]

I can't rep you anymore right now, but please know the thought was there.

Shyfemmekat, thank you so much.

[hellboi]

Hey, it's mah brother!

My war gaems are all boring now.......what the heck am I sposed to do now????? Grnadkids can't beat me at monopoly...tired of building junk in the war games..tired of killing npc troops..no good wars with anyone who actually knows how to use their troops..

I need a new game.......

[Lady_Wu]

hellboi, i know that this is out of your genre. if we could find a way to play online scrabble, i think i could give you a challenge!
Lady_Wu

My war gaems are all boring now.......what the heck am I sposed to do now????? Grnadkids can't beat me at monopoly...tired of building junk in the war games..tired of killing npc troops..no good wars with anyone who actually knows how to use their troops..

I need a new game.......

[Shyfemmekat]

My war gaems are all boring now.......what the heck am I sposed to do now????? Grnadkids can't beat me at monopoly...tired of building junk in the war games..tired of killing npc troops..no good wars with anyone who actually knows how to use their troops..

I need a new game.......

You could make something for the baby. You could do some kind of volunteering. You could give your sister a holler.

[Shyfemmekat]

hellboi, i know that this is out of your genre. if we could find a way to play online scrabble, i think i could give you a challenge!
Lady_Wu

I bet you could!

[Shyfemmekat]

After I lost a hundred and three pounds, (diet and exercise due to a heart issue) The Dr. introduced me to topamax for migraines. It is said to be a combination drug, meaning it works for a couple different things. Anyhow, while I never had another migraine again.....I also didn't loose any additional weight. It does not supress the appetite on everyone.

It is extremely expensive....even in generic form......and yes, it did control the migraines, but it is a BRUTAL medication. (many people call it stupidmax) Articulation was so difficult for me. I've been off of it since July, and an Finally able to speak closer to normal.

Now, having said all of this. I'd still take topamax again in heart beat, because IT DOES WORK! Just not sure about the weight loss thing being an absolute. I haven't gained any weight since I stopped taking it either.

It is soon to be Feburary. We've got most of this winter stuff behind us. Hope all is well.

Boy, it's good to hear from you!

I've also heard it called the "supermodel" drug because it makes you thin and stupid. I am glad you got some relief. Migraines totally suck.

Yes, the days are getting longer again. Woohoo! Will be seeing some crocuses somewhere soon. I didn't plant bulbs last year, just didn't have the money. Maybe this fall.

I remember my dad going out on the porch with his walker to look for the first crocuses of the spring. We would check almost every day and we'd get so excited when we finally saw one. Then we'd watch for the tulips and daffodils.

[Shyfemmekat]

Popping my head in to say good morning to all the peoples. I am sickity sick sick from my shot and heading back to the warmth of my bed, assorted cats and a good book. Hope everyone is doing well. I am going to get caught up on everything this weekend, I hope.

SAB, how are y'all doing?

[Shyfemmekat]

FDA Announces Recall of 2M Defective Needles

WASHINGTON –
Federal health officials announced the recall of 2 million medical needles Tuesday because of a risk they can push bits of silicone into patients' bodies.

The Food and Drug Administration said Japanese manufacturer Nipro Medical Corp. has voluntarily recalled its Exel/Exelint Huber needles manufactured between January 2007 and August 2009.

The needles are used to access injection ports, which are devices implanted beneath the skin of patients who require frequent injections. The ports connect to a vein and allow easy delivery of chemotherapy, antibiotics and other injectable drugs.

Huber needles are designed to be non-coring, or to penetrate an injected material without retaining any of it.

However, a monthslong FDA investigation found that the needles can dislodge bits of silicone from the ports, potentially pushing them into the patient's bloodstream. The problem can also damage the ports themselves, resulting in problems delivering drug therapy.

An inspection at Nipro's manufacturing plant in Japan found that 60 to 72 percent of the company's needles had the design problem, according to the FDA.

"The agency's laboratory work helped determine the coring problem, and we will continue to work with manufacturers to address coring issues as quickly and thoroughly as possible," said Dr. Jeffrey Shuren, FDA's director of medical devices.

Huber needles have been approved in the U.S. since 1984, according to the FDA.

FDA officials told reporters Tuesday they are working with 19 other manufacturers to determine if their needles have the same problem. The agency estimates 6 million Huber needles are sold in the U.S. each year.

According to FDA regulatory specialist Mary Brooks, there have been no reports of silicone shards in patients, though it may be difficult for doctors to identify the problem.

Tuesday's announcement was the second mass recall from Nipro Medical in less than a week. On Thursday the company recalled 15 lots of GlucoPro Insulin Syringes because of a defect that can cause the needles to detach.

FDA advised hospitals and doctors to stop using the Huber needles and return them to Los Angeles-based Exel International, which distributed the products in the U.S. The company can be reached at 1-800-940-3935.

A spokesman for Exel said the company hopes to wrap up the recall within 30 days.

The FDA made several recommendations to physicians when using other Huber needles, including: watching for signs of tissue or nerve damage in patients, which could be a sign of damage to an injection port. The agency also suggested throwing out the first syringe injected into a port, in an effort to discard any bits of silicone.



By MATTHEW PERRONE; AP Business Writer
Published: 01/26/10 9:02 am | Updated: 01/26/1012:38 pm

Excerpted from the Tacoma News Tribune

[SimpleAlaskanBoi]

we are doing pretty good here...cats are driving Me up the walls, but not too bad. daisy's cyst is almost all healed & I've been tidying up a bit.
Hope you all have a great weekend!
~SAB

[hellboi]

I bet you could!

hellboi, i know that this is out of your genre. if we could find a way to play online scrabble, i think i could give you a challenge!
Lady_Wu

Scramble..they do that in English..right?? lol I speak Okie..and Ican't even spell that right..how the heck I'm gonna play scrabble???? lol..course..fi I can have canon or catapults in that..well..then yer on!!!!
I think they do have an online version of that called literati or sumthin like that

[Lady_Wu]

okie-dokie, very hao, you wanna speak okie, i speak appalachian hanyu. ni hao, you all? i bu know what enrish zhi. how you say enrish fer pengyou/ nin say ritelari? i tly find.
xiexie,
Lady_Wu

Scramble..they do that in English..right?? lol I speak Okie..and Ican't even spell that right..how the heck I'm gonna play scrabble???? lol..course..fi I can have canon or catapults in that..well..then yer on!!!!
I think they do have an online version of that called literati or sumthin like that

[blassr]

okie-dokie, very hao, you wanna speak okie, i speak appalachian hanyu. ni hao, you all? i bu know what enrish zhi. how you say enrish fer pengyou/ nin say ritelari? i tly find.
xiexie,
Lady_Wu

thank you so much lady!!! its early morning on this side of the appalachians and i havent even finished half my cup of coffee and for some reason this made me bust a gut laughing!... my son thinks i am insane... but hes 20 so im sure thats not all he thinks about his ol butch ma... so thank you lady... for making me smile this morning...

=blass=

[StarFire]

I had to respond to LadyWu's, ni hao. Hen hao, Lady Wu.
I hope Anne's mother is doing well. I hope all of you here are feeling good, today!

[Lady_Wu]

wo hen kaixin ge nimem gongxiang wode Appalachian Hanyu! (i'm very happy that you enjoy my Appalchian Chinese!)
i'm currently buried under about a half a foot of snow here! i can't even see the road. i just that the kind neighbour who parks his truck right across from Mom's did not do so again. if he did and can't move it, then the snowplows won't be able to get through to the remaining road. but, since we live on a tertiary road, the snow most likely be gone before they would come here!
Lady_Wu

[femme-licious]

fly by hellooo.... to say i am thinking of all of you. lack of sleep from the rotator cuff incident seems to have aggravated my cfids. so pain is better and i sleep better but other symptoms pretty awful. plus the deg disc seems to have taken a bad turn. gah. hey i am alive and here to tell the tale right and it could be worse. blessings to you all, who deal with so much every day. *waves* back when i can sustain more up-time.

[aceman131963]

As a stone femme who has MS and other conditions my life has changed because my level of ability to do things has altered. Things that were once simple have now become more difficult, requiring modifications. Acitivities that once brought me much pleasure have had to be abandoned or severly curtailed because of my health issues.

The changes on my brain have made me more emotional, more irritable, less patient. I am quick to anger and quick to cry. I forget things easily. Sometimes I have to search for the right word I want when words used to roll off my tongue without conscious thought. I become frustrated easily. It affects me socially as well.

As a result of my health issues my self esteem level is sometimes VERY low. I find myself feeling less than feminine, very un-femme-ly, for lack of a better word. I can't wear high heels any more because my balance is horrible. I sometimes wonder what I have to offer my partner, being that my condition is a chronic lifetime one that will not suddenly get better. It may only stay the same or worsen with time.

I suspect I am not the only one who feels these things. I would like to hear from others who have physical disabilities and feel these things. What is your story? Do you feel less attractive, less "femme/butch/insert your choice of gender term here"? How do you cope? What are your experiences? How do you keep truckin' on?

I would ask a few things:

1) Be respectful at all times. Not everyone here will share your POV and/or politics. That's OK. We are all different.
2) If you cannot be supportive of those who participate, please go elsewhere.
3) Not everyone who may post here will ID the same way. Someone may ID as "lesbian", another as FTM. That's okay. Quibbling about someone's gender ID, etc., is NOT what this thread is being started for. Please keep that kind of stuff out of the thread.
4) Not everyone will feel perky at all times. That is OK too. Judicious ranting about your condition is allowed.
5) This is a place of support, a place where folks can share all kinds of deep things, ask questions, etc. It is hard for some to share, so let's keep it positive and encouraging! If you have a personal issue with someone, handle it in a PM. Do not attack someone in a post to the thread. It will not be tolerated.

I believe in being up front, so:

NO DRAMA. NO FLAMING. PERIOD.

Let's get the ball rolling!

Namaste,
ShyFemmeKat

I am sorry you got MS. I feel alot of the things you do. My main problem is that I have abrain tumor and that has affected alot of mental stuff like you mentioned. It makes me very mad whn I can't remenber a word or what I was talking about or what happened yesterday. I had back surgery and have severe arthritis in there plus fibromyalgia which they think no may be hypothroid. I can't paly sports any more which I love. That really pissed me off too. I finally asked my neuro doc if I could take androgel and he said absoltely not, even T-oosters so I can't get any facial hair or anything else. That is killing me. I still feel like a guy but I am not transformed at all. But I keep trying to get stronger and get my eye to hand thing (forgort word) working if icN. tHEY SAID THE RADIATION EFFECTS GET WORSE as you agee so I'm like oh thats just f'in great.Thank for letting mr share.

[aceman131963]

I wanted to post something about the ongoing irratation ppl have with those who have handicapped tags. I have a handicapped license. I had NO choice in getting it. I have a head injury, have seizures on a daily basis, take multiple meds daily, etc. Is this anyone's business in the general public - NO. It irratates me beyond belief that ppl look at me and "see" an abled bodied human being. Not all handicapps are visual. Some are invisable. Now, get off my back about it. Sheesh.

Woodie, I feel ya. people are always giving me dirty looks.. Shows how much they know. Not much.

[aceman131963]

MountainGirl,

People who have never suffered a head injury have no clue as to what it is that we suffer each and every day. I never had a chance to "know" my pre-accident persona (since I was only a day old). It is this body that I suffer with each and every day. At night sometimes I think about if and when I die and go to Heaven, will my brain be healed, and will I be able to function as most do there? It is just that bothersome to me from what I have experienced so far on this earth.

Another great example is that I love living as a man. I hate my female body. I am so fulfilled (personally) that I am sometimes perceived and treated as a male. I hate it when I am treated as a female. It is not "me". Being a male is how I "id".

When looking for a job, most read the job description and what the requirements are. I look at who is ADA friendly (most are not because they don't want to have to deal with the Fed gov't interferring in their business). I worry about if I can "do" the job satisfactory, and maintain a good work record. It is like once I get hired, eventhough my employers know of my handicapp statis, they look the other way, and try to find ways to fire me. They don't want to list it as not being able to do the essential functions of the job, but for some other reason. I have yet to have job satisfaction and never intend on finding or having any. It is just that plain and simple for me at this point in my life.

I also have tried to get disability from SS (was always denied), but never had any help from any dr's. They think that all brain damaged folks can work for min wage and live a normal life. I just shake my head. I would love to have one of them try to live on $5 or less a day. This of course wouldn't include medical insurance or a drug plan.

I have experienced a life that is not what I thought it should be. I am blessed. I have alot to be grateful for, but am tired of having door after door slammed shut in my face. It gets old real fast.

Peace to all,
Andrew

Woodie, you said it all as far as I am and what I have gone through. You should be able to get disability. I can't remember how I got mine, but I would talk to some high up person and say how do I not qualify? This is B.S.! I think it took me a while to get but eventually I got it. So don't give up! God Bless

[aceman131963]

That is great Daywalker that you were able to make light of it and break the ice freeze that could have happened around your cold leg

I still feel shame about my braces. They are not visible though to most except they limit the kind of shoes I can wear. Men's sports shoes just are not my favorite thing (even though I do enjoy tennies in general). When I was considering getting a walking stick I wanted an elaborate one with engravings and such. Because I figured it would make me feel better about it. I also wanted a taller walking staff and not a cane per se. I still think I will get one because there are times when it is easier to have the extra support even with the braces on. I just have to find a place that has what I want. The first one I saw that I liked was at an art fair and I just didn't have the money then to buy it.

Thanks for your post.

Michele

Mic, I found my walkind stick ata fair. It is all wood but cut in aunique way (or maybe it just grew that way). This guy was very professional. Check on the internet to see if you have anyone like that near you. Maek sure its the reak deal b/c there's alot of scammer out there, Good luck!

[aceman131963]

Andrew,

The issue with payment for trans issues is that it is even listed in the DSM. It is still listed as a DISORDER that is to be "cured." The current belief of "cure" is not necessarily the HRT and surgeries but to change the problem of the mind. So like one would not give an alcoholic, alcohol to "cure" them and I believe Methadone clinics are technically "new" for drug addictions, to pay for the surgery or HRT would not be "curing" the Gender Identity DISORDER.

But mind you, most people will get more days inpatient for alcohol addiction or drug addiction than for depression. People with chronic depression can get turned down for payment for therapy but not for medication management. When I first entered the tunnel of psychiatric illness, I was diagnosed specifically with a mild "impairment" so insurance would cover my treatment but not limit it. Makes no sense huh?

FTM is an ILLNESS therefore the treatment that is currently "typical" is to cure it by changing the mental aspect of it not curing it by aligning the physical body to the reality of the person. So of course insurances will not pay for it because it is promoting the "illness" so to speak. It is more or less like letting someone with hallucinations have them because they want to and not making them take medication when they are a danger to themselves or society. (Which I have seen patients forced by court order to take medication for hallucinations.)

Technically mental illness treatment does not = money. The drugs do but people are allowed less and less access to the talk therapy that can make or break the rest of their life. So you might be lucky to get 30 visits a year. Now add an addiction diagnosis and you might get another 30 too. But sometimes that isn't even the case. You can get a lot of drugs because the drug companies make money.

Am I making better sense now? The DSM basically exists to help determine the "best" treatment for the patients. The "best" treatment is the one that will make the drug companies the most money and will cost the insurance companies the least, not the treatment that will help the patient live a better life.

They were more than happy when I first started working again after I went on disability in 94. I was working 2 days a week- 4 hours a day. They were going to be content with me doing that job. That was them accomplishing the task of me being better. I was cutting old stained clothes that would not sell at GoodWill into rags with this machine thing. How the hell is that living? But THAT is what the government will pay for and what they see as adequate treatment and recovery for chronic mental illness.

I am glad I didn't take it and I am proud of where I am today in spite of what I have had to deal with.

Thank you for your post and your input and insights. It helps me to understand and think about things too from a different arena.

Take care.
Michele

*edited for clarification*

Michele, this is a great post. My Mom believes its amental illness too or at least apyshologocal one. I have heard of studies that are saying its a genetic issue. If that gets verified, then what are the gonna say?

[MiamiButch]

Hello everyone. Sorry I haven't been in here so long, but I just got medical confirmation about something I have been suspecting for a while. I did indeed have a minor stroke, plus recently, another one, my right side of my face is tight while the left side of my smile is slack, as compared to how it was beofre. I also am having some troble with my vision, as it is getting blurry on occaision and it makes typing all the harder. Luckily though, my doctor suspecs that I have not suffered any severere damage to mu btain, but I can tell that I am not as well as I was bfore the straoke. Please keep me inyour prayers, as I ama bit frightened by the prospect of oanyther stroke, My fatgher passed away from a massive stroke two years back. I'll jkeep posting as I can. Much love and lighy6 to you all.

[treesx2]

[quote=Shyfemmekat;3245142]Boy, it's good to hear from you!

I've also heard it called the "supermodel" drug because it makes you thin and stupid. I am glad you got some relief. Migraines totally suck.


Migraines can be such an interruption of life. The topamax being dubbed *supermodel* made me laugh.

It's always nice to read your positive posts Shy. Hope today finds you doing a little better.

[aceman131963]

Hello everyone. Sorry I haven't been in here so long, but I just got medical confirmation about something I have been suspecting for a while. I did indeed have a minor stroke, plus recently, another one, my right side of my face is tight while the left side of my smile is slack, as compared to how it was beofre. I also am having some troble with my vision, as it is getting blurry on occaision and it makes typing all the harder. Luckily though, my doctor suspecs that I have not suffered any severere damage to mu btain, but I can tell that I am not as well as I was bfore the straoke. Please keep me inyour prayers, as I ama bit frightened by the prospect of oanyther stroke, My fatgher passed away from a massive stroke two years back. I'll jkeep posting as I can. Much love and lighy6 to you all.

Miami,
You are in my prayers. Hope you never have another stroke again. God bless.

[PrimoKnight65]

I know it has been a few days since I have posted anything about Mom, so here we go. Last Thursday she went and had her blood drawn, and a CAT scan done, they told her that her liver and blood were not involved, and that she had to go back on Friday for a bone scan. So back she went, had the test and then met with her oncologist.
He told her that it looks like the cancer is isolated to her breast, that it is a sarcoma that is caused by radiation (radiation from her first bout with breast cancer), and that she was to see the surgeon Thursday 4th of Feb to find out about a surgery date for her mastectomy.

Seems this type of cancer doesn't respond well to Chemo, so it will just be the surgery, unless something unexpected pops up.

Thank you all for the well wishes and the prayers..I will attempt to keep you up to date on all that is going on.

[Rhoda]

Hello everyone. Sorry I haven't been in here so long, but I just got medical confirmation about something I have been suspecting for a while. I did indeed have a minor stroke, plus recently, another one, my right side of my face is tight while the left side of my smile is slack, as compared to how it was beofre. I also am having some troble with my vision, as it is getting blurry on occaision and it makes typing all the harder. Luckily though, my doctor suspecs that I have not suffered any severere damage to mu btain, but I can tell that I am not as well as I was bfore the straoke. Please keep me inyour prayers, as I ama bit frightened by the prospect of oanyther stroke, My fatgher passed away from a massive stroke two years back. I'll jkeep posting as I can. Much love and lighy6 to you all.

(((((((((Miami)))))))))

Oh Miami, i'm so sorry to read your news, sending healing prayers your way and all my love, please take care. I know you are in all our thoughts and prayers.

[Rhoda]

I know it has been a few days since I have posted anything about Mom, so here we go. Last Thursday she went and had her blood drawn, and a CAT scan done, they told her that her liver and blood were not involved, and that she had to go back on Friday for a bone scan. So back she went, had the test and then met with her oncologist.
He told her that it looks like the cancer is isolated to her breast, that it is a sarcoma that is caused by radiation (radiation from her first bout with breast cancer), and that she was to see the surgeon Thursday 4th of Feb to find out about a surgery date for her mastectomy.

Seems this type of cancer doesn't respond well to Chemo, so it will just be the surgery, unless something unexpected pops up.

Thank you all for the well wishes and the prayers..I will attempt to keep you up to date on all that is going on.

(((((((((Primo)))))))))

Thanks for keeping us posted on your mother's condition. Hope you are okay Primo, i know this news is not what i prayed for, so i will refocus my prayers for your mother and father and you.

Please call if you need to talk or vent or whatever.......my phone is charging right now but should be back full power in a couple of hours.

for got to check it before going to bed last night.... sorry about that.....

[Rhoda]

Welcome Aceman131963!!!

Thanks for joining us, so, tell us more about YOU.

Do you have pets? (you are required to post pics if you have them so we can see how cute they are)

What is your favorite food/movie/music/color?

What do you do for fun/relaxation?

Yep, i'm nosy, but a good nosy....... lol

4

Good morning Everyone!!!

[Taino_Warrior_007]

Good morning
I have been away because i had to create a new account I forgot my passed word any way its along story I am here now. How are all my friends doing. Rhoda I am glad your honey is back home with you. Lady Wu how are you? I have to run now But I will write more later today. Have a great everyone

[Lady_Wu]

Dear MiamiButch:
i can empathize w/you. i have had two strokes, both located in the deep brain area-hypothalamus/pit gland. my docotrs basically sent me home to die. most people w/my type of strokes do not live. as usual w/me, i proved them wrong and even went back to work for awhile. you need to exercise your brain all that you so that new neuron pathways can be built. study, do word search puzzles, these
Lady_Wu

Hello everyone. Sorry I haven't been in here so long, but I just got medical confirmation about something I have been suspecting for a while. I did indeed have a minor stroke, plus recently, another one, my right side of my face is tight while the left side of my smile is slack, as compared to how it was beofre. I also am having some troble with my vision, as it is getting blurry on occaision and it makes typing all the harder. Luckily though, my doctor suspecs that I have not suffered any severere damage to mu btain, but I can tell that I am not as well as I was bfore the straoke. Please keep me inyour prayers, as I ama bit frightened by the prospect of oanyther stroke, My fatgher passed away from a massive stroke two years back. I'll jkeep posting as I can. Much love and lighy6 to you all.

[Onehonestbutch]

PK,
I am so sorry to hear this news as I know you and your mom and dad must be having a tough time not trying to worry and all. I will send out more prayers for your mom's healing, and for you and your dad. Hang in there buddy, and if you need to call day or night, you got our number, just hit the dial pad keys and let it ringy dingy until we answer. If goes to voice mail, hang up and call back immediately, cause it's set to go in only 4 rings.....something I can't seem to figure out how to change yet.
I"ve called ya over the weekend and left ya a couple voice mails. I hope your doing alright my friend. Let me know any other news that comes up about your mom, and CALL ME so I know your alright.
OHB

[Onehonestbutch]

Hey Miami,
I am sorry to hear about your stroke. I hope your alright. I will keep ya in my prayers. You might want to go your doctor to find out WHY you had them, have them run some tests if need be. And do excersize your brain with word puzzles and things like that, things that make you think. it will help.

[Shyfemmekat]

[QUOTE=treesx2;3246142]

Boy, it's good to hear from you!

I've also heard it called the "supermodel" drug because it makes you thin and stupid. I am glad you got some relief. Migraines totally suck.


Migraines can be such an interruption of life. The topamax being dubbed *supermodel* made me laugh.

It's always nice to read your positive posts Shy. Hope today finds you doing a little better.

We aim to please. Glad to see you posting. I always enjoy your posts.

[Shyfemmekat]

we are doing pretty good here...cats are driving Me up the walls, but not too bad. daisy's cyst is almost all healed & I've been tidying up a bit.
Hope you all have a great weekend!
~SAB

Right on! Give her my best.

[Shyfemmekat]

Hello everyone. Sorry I haven't been in here so long, but I just got medical confirmation about something I have been suspecting for a while. I did indeed have a minor stroke, plus recently, another one, my right side of my face is tight while the left side of my smile is slack, as compared to how it was beofre. I also am having some troble with my vision, as it is getting blurry on occaision and it makes typing all the harder. Luckily though, my doctor suspecs that I have not suffered any severere damage to mu btain, but I can tell that I am not as well as I was bfore the straoke. Please keep me inyour prayers, as I ama bit frightened by the prospect of oanyther stroke, My fatgher passed away from a massive stroke two years back. I'll jkeep posting as I can. Much love and lighy6 to you all.

Damn, I didn't know. I will give you a call.