Physical Disability & Self-Esteem: Life As It Is Now, Coming To Terms, Rising Above

[Shyfemmekat]

I only "celebrate" (mark? there must be another word than celebrate ) one of my diagnoses, December 16th, my first cancer diagnosis. Fortunately the dates of the other two didn't stick in my head. Sometimes it pays to be a little scatterbrained.

Peregrine

Thanks for helping me keep it in perspective, Precious P. I needed that.

Love You,
SFK

[ArchAngel Gabriel]

can anyone tell me about plantar faciitis? I think I may have found whats wrong with my foot. Does it go away? can I still play on it?

[Shyfemmekat]

I'm a bit confused...Shy where are you going? I'm proud of you anyway, but what is it you will be doing...I missed something somewhere.

This is a Partnership for Prescription Assistance thing I was invited to do recently. hunting for my itinerary, ooooh, there's my Diet Wild Cherry Pepsi...

5/14/07 - Leave Indiana, check in that afternoon to Hyatt Arlington. Woo, then it's all about room service, shower and sleeeeeeeeeeeeeeeeeep.

5/15/07 - Buffet breakfast early then off to testimonial videotaping, info session and finally welcome dinner at Mezza9.

Mezza9 and Olive Press: http://arlington.hyatt.com/hyatt/hot...ants/index.jsp

5/16/07 - Early breakfast, short press conference event with Montel and an amazing woman named Mayte Prida:

Mayte Prida - A Survivor's Tale
http://www.hispaniconline.com/magazi...ures/tale.html

Mayte is a breast cancer survivor, television personality, producer and author who lives in Miami, Florida. She appears on Entre Amigas, as part of the national TV morning show Cada Día with Telemundo. I do not speak Spanish but for those of you who do, like our dear MiamiButch:

Cada Dia - Mayte Prida
http://tv.telemundo.yahoo.com/cadadi...yte-prida.html

We will also be going to meet with some elected officials, times to be given upon arrival. Following that will be a reception.

5/17/07 - Early breakfast, meetings with elected officals, then zoom off to airport to fly away home, shower, eat and collapse.

SFK

[Shyfemmekat]

can anyone tell me about plantar faciitis? I think I may have found whats wrong with my foot. Does it go away? can I still play on it?

Gabe, here is what looks like to be a good piece on it:

Mayo Clinic - Plantar Fasciitis
http://www.mayoclinic.com/health/pla...ciitis/DS00508

I have had it and it hurts like crazy. Mine was from having a job where I was on my feet a lot and the fact that I am a very fluffy girl. As I have lost a bit of weight since then and no longer have a standing job it is better. I am also VERY picky about the shoes I wear now, especially since I got this dumb neuroma. Hope this helps you.

SFK

[Shyfemmekat]

runs in quick before heading to work.....((((((((((shy)))))))))

reminds everyone the days are getting longer and hotter.....stay cool....plenty of fluids....and vitamin C please.......


utilize the shade trees and enjoy the beauty of the birds singing reminding us each day brings new life


kisses to all much love from our home to yours !!!!!

And from mine to yours, pretty lady. Keep an eye on that Daddi of yours, he's fractious and funny. I hear that Mc Donald's french fries and music files can soothe hym. Pet Samson and Delilah for me.

PS Ketchup rocks, I even like it on fish and shrimp and in a pinch it will do for scrambled eggs if there is no Tiger Sauce. Yeah, I'm country like that.

SFK

[guitarboi]

It's coming back to me. That's fantastic Shy!
xo
GB

This is a Partnership for Prescription Assistance thing I was invited to do recently. hunting for my itinerary, ooooh, there's my Diet Wild Cherry Pepsi...

5/14/07 - Leave Indiana, check in that afternoon to Hyatt Arlington. Woo, then it's all about room service, shower and sleeeeeeeeeeeeeeeeeep.

5/15/07 - Buffet breakfast early then off to testimonial videotaping, info session and finally welcome dinner at Mezza9.

Mezza9 and Olive Press: http://arlington.hyatt.com/hyatt/hot...ants/index.jsp

5/16/07 - Early breakfast, short press conference event with Montel and an amazing woman named Mayte Prida:

Mayte Prida - A Survivor's Tale
http://www.hispaniconline.com/magazi...ures/tale.html

Mayte is a breast cancer survivor, television personality, producer and author who lives in Miami, Florida. She appears on Entre Amigas, as part of the national TV morning show Cada Día with Telemundo. I do not speak Spanish but for those of you who do, like our dear MiamiButch:

Cada Dia - Mayte Prida
http://tv.telemundo.yahoo.com/cadadi...yte-prida.html

We will also be going to meet with some elected officials, times to be given upon arrival. Following that will be a reception.

5/17/07 - Early breakfast, meetings with elected officals, then zoom off to airport to fly away home, shower, eat and collapse.

SFK

[ArchAngel Gabriel]

Gabe, here is what looks like to be a good piece on it:

Mayo Clinic - Plantar Fasciitis
http://www.mayoclinic.com/health/pla...ciitis/DS00508

I have had it and it hurts like crazy. Mine was from having a job where I was on my feet a lot and the fact that I am a very fluffy girl. As I have lost a bit of weight since then and no longer have a standing job it is better. I am also VERY picky about the shoes I wear now, especially since I got this dumb neuroma. Hope this helps you.

SFK

thanks for this link shy. good info here.

[Peregrine Magic]

Thanks for helping me keep it in perspective, Precious P. I needed that.

Not my intention, but you're welcome.

One time when I went into a funk around the date of the death of one of my brothers, a friend of mine told me that she deliberately ritualizes painful anniversaries so that they don't blindside her. She marks them on her calendar and does something-- goes to the beach, watches a certain movie, eats a certain meal, whatever seem an appropriate remembrance-- in commemoration. All of her painful anniversaries were deaths, but I like the idea in general. I'm going to extend it to other types of events.

Butches and ketchup ,

Peregrine

[Shyfemmekat]

Not my intention, but you're welcome.

One time when I went into a funk around the date of the death of one of my brothers, a friend of mine told me that she deliberately ritualizes painful anniversaries so that they don't blindside her. She marks them on her calendar and does something-- goes to the beach, watches a certain movie, eats a certain meal, whatever seem an appropriate remembrance-- in commemoration. All of her painful anniversaries were deaths, but I like the idea in general. I'm going to extend it to other types of events.

Butches and ketchup ,

Peregrine

I think that is a fine idea and I am going to do that from now on. I have done it for the death of my dad before, planning something special to do, but I guess I never thought to do it for the MS.

SFK

[DAYWALKER]

Gabe, here is what looks like to be a good piece on it:

Mayo Clinic - Plantar Fasciitis
http://www.mayoclinic.com/health/pla...ciitis/DS00508

I have had it and it hurts like crazy. Mine was from having a job where I was on my feet a lot and the fact that I am a very fluffy girl. As I have lost a bit of weight since then and no longer have a standing job it is better. I am also VERY picky about the shoes I wear now, especially since I got this dumb neuroma. Hope this helps you.

SFK

M'Lady has that...common amongst the nurses I am hearing.

I shit you not, she has one of those really long magnet-type stone necklaces wrapped around her ankle all the time. Between that and, I shit you not...lol, walgreens brand of foot/heel salve in a really little jar rubbed on 3 to 4 times a week...hers damned near went away!

The intensity it was at, is now totally tolerable.
Interesting to say the least...yes?

Ketchup....Indeed

[LADY FLAMEZZZ]

M'Lady has that...common amongst the nurses I am hearing.


I shit you not, she has one of those really long magnet-type stone necklaces wrapped around her ankle all the time. Between that and, I shit you not...lol, walgreens brand of foot/heel salve in a really little jar rubbed on 3 to 4 times a week...hers damned near went away!

The intensity it was at, is now totally tolerable.
Interesting to say the least...yes?

Ketchup....Indeed

I promise these stones will give relief from plantars fashitis....i couldnt walk with out holding on to a near by wall the pain was so bad, with in 24 hours of wearing these beads the pain in my feet had lessened by 75 percent..............i swear by this stone !!!

Arizona Bead Company: Magnetic Hematite beads

[ArchAngel Gabriel]

erm ok but how do i wear them? I only have hiking boots.

I book marked both sites.

I promise these stones will give relief from plantars fashitis....i couldnt walk with out holding on to a near by wall the pain was so bad, with in 24 hours of wearing these beads the pain in my feet had lessened by 75 percent..............i swear by this stone !!!

Arizona Bead Company: Magnetic Hematite beads

[LADY FLAMEZZZ]

can anyone tell me about plantar faciitis? I think I may have found whats wrong with my foot. Does it go away? can I still play on it?

AAB....i have suffered with it for a few years . i woke up one morning and about fell on my face when i tried to stand up. the pain is immobilizing...i have the cure at least for me this has worked wonders. i put a link in the post prior to this one....the magnetic energy seems to pull the pain right out of my heels and ankles ( hemetite)...my left foot has totally healed...the right heel is still tender but very tolerable now.any little mall jewelry store usually has this product . they make bracelets and necklaces out of it. i wear one almost constantly.i have heard of instances where people have said , it just sometimes goes away as fast as it came.
please try the beads. the cost is very minimal usually you can purchase a bracelet for as little as ten bucks......i use mine as an ankle bracelet of course ....i wish you luck ,i know the pain is horrid.....much respect .........

[LADY FLAMEZZZ]

they bracelets are usually strung on strechie thread of sum kind,lol

easily worn on the ankles under your socks !!!

[astarte]

Hello all

It’s been a year or more since I’ve posted here. I think I've just felt like a big whiner and had nothing optimistic to say. I’ve been battling the same tiresome, painful injuries, but I now just might have a clue as to what’s causing it. And I'm very excited.

I’ve found an organization in the UK that specializes in caring for and treating HMS – Hypermobility Syndrome. HMS is a soft tissue condition that manifests in a huge variety of ways. In my case it’s been hernia, bursitis, disk degeneration, tendonitis, as well as various muscular strains and sprains.

The dr’s have always treated them on an individual basis because up until a year and a half ago I was still performing as a ballet dancer. Because of my flexibility and the huge stress on my body it made sense. But suddenly everything started falling apart piece by piece. Right now for example I have bursitis in my knee, hip, tendonitis in my leg, plus a bulging disk at my L5/SI joint – and that's after a year of doing nothing except for physical therapy exercises.

Anyhoo, the point of all this is that I am desperately looking for someone who specializes in HMS. There is no one in my city. It seems to be one of those underdiagnosed, more “theoretical” conditions. I see a huge community in the UK, but nothing in the US.

Any ideas to help me find a care provider, even one to have a simple phone conversation with?

So much love and thanks in advance….

the crippled ballerina,
astarte

[astarte]

Hello all

It’s been a year or more since I’ve posted here. I think I've just felt like a big whiner and had nothing optimistic to say. I’ve been battling the same tiresome, painful injuries, but I now just might have a clue as to what’s causing it. And I'm very excited.

I’ve found an organization in the UK that specializes in caring for and treating HMS – Hypermobility Syndrome. HMS is a soft tissue condition that manifests in a huge variety of ways. In my case it’s been hernia, bursitis, disk degeneration, tendonitis, as well as various muscular strains and sprains.

The dr’s have always treated them on an individual basis because up until a year and a half ago I was still performing as a ballet dancer. Because of my flexibility and the huge stress on my body it made sense. But suddenly everything started falling apart piece by piece. Right now for example I have bursitis in my knee, hip, tendonitis in my leg, plus a bulging disk at my L5/SI joint – and that's after a year of doing nothing except for physical therapy exercises.

Anyhoo, the point of all this is that I am desperately looking for someone who specializes in HMS. There is no one in my city. It seems to be one of those underdiagnosed, more “theoretical” conditions. I see a huge community in the UK, but nothing in the US.

Any ideas to help me find a care provider, even one to have a simple phone conversation with?

So much love and thanks in advance….

the brokendown ballerina,
astarte

[Shyfemmekat]

Hello all

It’s been a year or more since I’ve posted here. I think I've just felt like a big whiner and had nothing optimistic to say. I’ve been battling the same tiresome, painful injuries, but I now just might have a clue as to what’s causing it. And I'm very excited.

I’ve found an organization in the UK that specializes in caring for and treating HMS – Hypermobility Syndrome. HMS is a soft tissue condition that manifests in a huge variety of ways. In my case it’s been hernia, bursitis, disk degeneration, tendonitis, as well as various muscular strains and sprains.

The dr’s have always treated them on an individual basis because up until a year and a half ago I was still performing as a ballet dancer. Because of my flexibility and the huge stress on my body it made sense. But suddenly everything started falling apart piece by piece. Right now for example I have bursitis in my knee, hip, tendonitis in my leg, plus a bulging disk at my L5/SI joint – and that's after a year of doing nothing except for physical therapy exercises.

Anyhoo, the point of all this is that I am desperately looking for someone who specializes in HMS. There is no one in my city. It seems to be one of those underdiagnosed, more “theoretical” conditions. I see a huge community in the UK, but nothing in the US.

Any ideas to help me find a care provider, even one to have a simple phone conversation with?

So much love and thanks in advance….

the crippled ballerina,
astarte

Here is one thing I've found so far, it's UK stuff, but I am still looking.

The Hypermobility Syndrome Association
http://www.hypermobility.org/index.php

Here is what I come up with when I searched the Mayo Clinic Site:

Mayo Clinic - Ehlers-Danlos syndrome
http://www.mayoclinic.com/health/ehl...706/DSECTION=2

SFK

[Gossamer]

Hello all

It’s been a year or more since I’ve posted here. I think I've just felt like a big whiner and had nothing optimistic to say. I’ve been battling the same tiresome, painful injuries, but I now just might have a clue as to what’s causing it. And I'm very excited.

I’ve found an organization in the UK that specializes in caring for and treating HMS – Hypermobility Syndrome. HMS is a soft tissue condition that manifests in a huge variety of ways. In my case it’s been hernia, bursitis, disk degeneration, tendonitis, as well as various muscular strains and sprains.

The dr’s have always treated them on an individual basis because up until a year and a half ago I was still performing as a ballet dancer. Because of my flexibility and the huge stress on my body it made sense. But suddenly everything started falling apart piece by piece. Right now for example I have bursitis in my knee, hip, tendonitis in my leg, plus a bulging disk at my L5/SI joint – and that's after a year of doing nothing except for physical therapy exercises.

Anyhoo, the point of all this is that I am desperately looking for someone who specializes in HMS. There is no one in my city. It seems to be one of those underdiagnosed, more “theoretical” conditions. I see a huge community in the UK, but nothing in the US.

Any ideas to help me find a care provider, even one to have a simple phone conversation with?

So much love and thanks in advance….

the brokendown ballerina,
astarte

Hi astarte, sorry to hear about how you are suffering. I have EDS (probably type III, but with a lot of vascular symptoms that seem to be crossover and a bit more skin involvement than is typical for the type), and 5 out of my 8 siblings do as well. I've spoken a bit with my rheumatologist as to whether HMS/BJHM (Bening Joint Hypermobility disorder) are one and the same as EDS type III. He's of the opinion that they are, or are very closely related. So, that in mind, you may find more information if you check out EDNF and EDS groups in the US. Also, sometimes you can be lucky if enough to find a rheumy who may not specialize in, or have any particular expertise in connective tissues disorders, but who would be willing to learn and work with you. My rheumatologist (or, rather, my rheumy + my siblings' rheumy, he treats the whole gaggle of us) is a very kind and considerate doctor. He and I research things pretaining to the condition, then come together to discuss what we've learned and where we should go from there.

Sorry if this isn't all that clear right now, today was not my best day ever.

If you have any other questions I'd be happy to do what I could to help. Best of luck to you.

[astarte]

Hi astarte, sorry to hear about how you are suffering. I have EDS (probably type III, but with a lot of vascular symptoms that seem to be crossover and a bit more skin involvement than is typical for the type), and 5 out of my 8 siblings do as well. I've spoken a bit with my rheumatologist as to whether HMS/BJHM (Bening Joint Hypermobility disorder) are one and the same as EDS type III. He's of the opinion that they are, or are very closely related. So, that in mind, you may find more information if you check out EDNF and EDS groups in the US. Also, sometimes you can be lucky if enough to find a rheumy who may not specialize in, or have any particular expertise in connective tissues disorders, but who would be willing to learn and work with you. My rheumatologist (or, rather, my rheumy + my siblings' rheumy, he treats the whole gaggle of us) is a very kind and considerate doctor. He and I research things pretaining to the condition, then come together to discuss what we've learned and where we should go from there.

Sorry if this isn't all that clear right now, today was not my best day ever.

If you have any other questions I'd be happy to do what I could to help. Best of luck to you.

This is wonderful information – thank you so much!!! I will absolutely look through these sites.

And I love the idea of finding a rheumy who is willing to learn. I’ve spoken with mine, who is sadly one of those you need to book months before you want to be seen, and he just doesn’t know where to start.

The only thing I have going for me is the fact that his daughter is training with the local ballet company and that somehow makes me relevant on a personal level. Maybe I’ll just work that angle and hope it’s enough for him to make an extra commitment to learning about my condition – whatever it may be.

Thanks again for taking the time to share this with me - it definitely helps!

[Sweetstonefemme]

I have so had it with Doctors...today my gp calls and wants some blood work, so off I go. I get the paper and head to the lab. Sitting there I read the wanted tests....they are for LYME DISEASE.. .and the reason is MENTAL CONFUSION !! This Dr has been told over and over by me, other Drs, and my partner about the TBi........i really give up !! On a lighter note tonight I was on the phone with my partner, and she asks if I was going to do some hosework this weekend while I am at her house, I have been re-learning stuff, and am rather enjoying it. Anyway I said gee you sound like you could use a wife ....her reply is "I am working on it"......cute huh.......

[MiamiButch]

Sorry I haven't been in lately, my sinuses and my allergies have teamed up for a marathon of nose watering, head aching, sinus breaking, nose skin chafing holiday. I feel like someone alternately stuffed, a running faucet, a bale of wet cotton, steel bristle brushes and a pound of tickly feathers up my nose. All this, PLUS I think I'm also catching a cold (Thank you, my neighbor with the snot nosed kid who came over to visit!) because I was running a fever yesterday. Not a high one, but a fever nonetheless. Anyone have a twenty pound aspirin/allergy tablet I can borrow? That way I can just stay in bed, lean over and lick it whenever I start feeling lousy. Right now, I just wanna be able to sit here at my computer without having to stuff my nose full of tissue so that my runny nose won't fry my keyboard! Hope everybody else is feeling good. I'm off to medicate myself... Have a great weekend, I'll be back by Monday, if my head hasn't exploded! lol : )

[ArchAngel Gabriel]

right now I do not hurt!!!!!

I sure do hope the rain eases up

[ArchAngel Gabriel]

miami, I will leave a small version of my rugby kit by your bed for you as well as a gallon jug of oj hope you get to feeling better. The air pressure eased here so right now I am not hurting at all.

Sorry I haven't been in lately, my sinuses and my allergies have teamed up for a marathon of nose watering, head aching, sinus breaking, nose skin chafing holiday. I feel like someone alternately stuffed, a running faucet, a bale of wet cotton, steel bristle brushes and a pound of tickly feathers up my nose. All this, PLUS I think I'm also catching a cold (Thank you, my neighbor with the snot nosed kid who came over to visit!) because I was running a fever yesterday. Not a high one, but a fever nonetheless. Anyone have a twenty pound aspirin/allergy tablet I can borrow? That way I can just stay in bed, lean over and lick it whenever I start feeling lousy. Right now, I just wanna be able to sit here at my computer without having to stuff my nose full of tissue so that my runny nose won't fry my keyboard! Hope everybody else is feeling good. I'm off to medicate myself... Have a great weekend, I'll be back by Monday, if my head hasn't exploded! lol : )

[Peregrine Magic]

Sorry I haven't been in lately, my sinuses and my allergies have teamed up for a marathon of nose watering, head aching, sinus breaking, nose skin chafing holiday. I feel like someone alternately stuffed, a running faucet, a bale of wet cotton, steel bristle brushes and a pound of tickly feathers up my nose. All this, PLUS I think I'm also catching a cold (Thank you, my neighbor with the snot nosed kid who came over to visit!) because I was running a fever yesterday. Not a high one, but a fever nonetheless. Anyone have a twenty pound aspirin/allergy tablet I can borrow? That way I can just stay in bed, lean over and lick it whenever I start feeling lousy. Right now, I just wanna be able to sit here at my computer without having to stuff my nose full of tissue so that my runny nose won't fry my keyboard! Hope everybody else is feeling good. I'm off to medicate myself... Have a great weekend, I'll be back by Monday, if my head hasn't exploded! lol : )

Jeez, you crack me up sometimes. VERY vivid image. You should write novels or poetry or something if you don't already.

I'm fine except for a little identity crisis. My membership is up and they took away my birdie icon. The generic chick is gonna have to do for now though as I have other financial priorities.

Peregrine

[Shyfemmekat]

My shot is kicking in and I am not feeling good otherwise but I wanted to share some news. The director of the health charity I receive my care from is putting together an information packet with a brochure of patient testimonials and she has asked me to be in it. I need to get a couple of good head shots done when I come home from the trip and we will use the best one, I guess.

I cried a lot today. I have been very angry and depressed for a while now. Trying to pull myself out of it and it is damn hard.

I haven't been a very good friend lately and I apologize. Some days it is a monumental effort to do much of anything. I appreciate all y'all of this thread for being here.

SFK

[Peregrine Magic]

I appreciate all y'all of this thread for being here.

I appreciate you for being there and for starting this thread to begin with. I don't know if I should say this because it sounds like I want you to suffer and I don't-- but the truth is that you lift me up partly because I know how you struggle. You are proof that I can deal with what I deal with and still be connected to Spirit and love people and enjoy the moment I'm in most of the time. Thank you.

My love to you and everyone else here.

Peregrine

[ArchAngel Gabriel]

hobbles in and waves

wearing a huge grin and not much else ok so I am clothed but nutin fancy

Rugby was fun. I got adjusted by some of the palmer people and the nice fellow who worked on me said i had somehow enflamed the tendons in my left elbow which is why it hurts like a mother to carry things with that hand. He popped it as well as my one unreachable spot on my back. I was starting to feel pretty good for once.

Quire went well and I made it through alright except now my poor feet are really hurting lol. I would not give up a thing. I am finally making friends. People were actually smiling and telling me I and the rest of us all did a really nice job... wow

I really should go to bed but I am still a bit excited.

Tomorrow is another busy day so I will bid you all adieu and may your feet not hurt as much as my poor feet do right now lol.

[ArchAngel Gabriel]

oh wow oh wow My arm only faintly aches today after sleeping on it. Oh yea. I am definately gonna go looking for a chiro. Hey if he or she can put me back together maybe i can run again. Maybe part of the trouble is I am out of whack from those 3 bad falls I've had over the past months.

Andrew thank you for the rep. You know I was asked if I could drive a forklift during my recent job interview. Is it hard to learn how?. As for my foot I am definately going to be fast exploring doing something for it. This is the foot I have poor tendons in anyway. I need to go find someone to teach me how to tape it so i can run in rugby. If it is taped correctly I can go all day with no pain in it ( well normal pain not this new heel thing). but then maybe that would help with the heel thing as well* shrug*

It is so much easier to get through the day if my feet do not hurt.

A grand morning everyone

[Shyfemmekat]

Well, the week is beginning again here and it is looking pretty good so far! The sun is out and I slept about ten hours, until I hurt so bad I HAD to get up.

Smiley mail has begun going out, first half went out Saturday. I would say begin checking your mailboxes by Wednesday.

This week will be hectic trying to get everything caught up. I'm going to use my kitchen timer and work like crazy in 15 minute segments.

Going to go start laundry. I hope all y'all have a great Sunday afternoon.

SFK

[MiamiButch]

Thanks for the rep, Andrew, and may God grant you an allergy free year. No such luck for me. I AM lucky though that a friend of mine donated some Claritin and such for the cause, so my head didn't explode, as I was sure it was going to, AND I no longer have to stuff tissue up my nose to lesson the nasal flood. No more flood, only a drop or two every once in a while! : ) And the tickles are almost gone too. Thank GOD for Claritin and for my friends, both RT and online! Y'all make me feel so loved! : )
Shy, your smileymail has been sent, hopefully it will get there before you leave on your trip. Hope everyone is having a good Sunday. I'm off to feed myself. Me HUNGRY!! lol

[akadyke]

i am disappearing for awhile...

life happens... and it sucks.

a.

[RblHarley4]

its monday am .. a new week .. a new beginning .. today i'm sending (hopefully) the last of the info needed.. to my lawyer .. for my disability appeal ... its in the hands of the ''Court of Appeals'' now. apparently they found some ''boo boo'z'' the LAST judge made in forming his decision he gave me in 2005 ... my new lawyer has been working on the appeal for almost 1-1/2 yrs now and i'm soooooooooo hoping when we go in this time it goes thru! *crossing finga'z & toez!!*
been fighting these ( ladies .. scuze my language here pleaze ) bastards for over 7yrs now ......... ya kno, it amazes me how some, their cases go saillllllling thru like nuttin .. and others of us.. it take yrs.
i have a friend of the family, who hurt her shoulder at work az a ... well ... basically a nurses aid .. and SHE got her case thru within 6 months!!! .... and now she can go golfing (i kno .. tell me bout it ...to hurt to work, but she can golf and do LOTZA other thingz!) anyyyyy timeeeee she wants to now !!
dont get me wrong ... i her ... i'm jus tired of see'n some folkz sail right thru .. and others .. who truuuuuly deserve it .. not!

... anyhow ... i jus wanted to wish everyone a ''great week'' (but thanx for allowing me to vent first ..

peace & strength to each of you!

[lionandlamb]

Hey y'all!!

Its good to see the thread active. It would be even better if I could be on it more often!! Allergies also have me right now, but I'm allergic to pretty much everything, so I don't get too upset. Only when it affects my asthma, do I really hit the meds.

I saw a new neurologist last week for my migraines. I have been taking Zonegran to try and prevent them, but it has been tough. I went through a battery of tests and he said he suspected I have a patent foramen ovale. It is a congenital heart defect in which there is a hole between the two upper chambers of the heart. Some research has found a link between migraines with auras and this CHD. The neuro said he strongly suspects this because the typical meds don't last, and that I have no family history of migraines. I am quite fortunate that a doc who closes these is at Duke, not far from where I live. His office called the cardiologist and initially they said their next available was November!! My neuro then paged the doc, and presented my case. I now have an appointment in 2 weeks!! In the meantime, I have been ordered to stop all caffeine!! OUCH!!! I was just getting into flavored creamers! Anyone else heard of the PFO-migraine connection?

Lastly, if I could tap into the greater experience of this group. I am dating someone who has pyriformis syndrome. She just started seeing a pain doc, and they did an injection of anti-inflammatories and bupivicaine into the sacro-iliac joint. While initially this made the pain worse, she had a really good weekend, with less pain. The doc wants her back in the end of May to repeat the SI injection again. He wants her to exercise in the pool to get a balanced strength (as her left leg is weaker than the right. She's left handed, so this should be the opposite). He has her taking naprosyn twice a day, as well as lortab 3x a day. She was on lyrica, but he stopped that. Has anyone ever dealt with this, or a similar issue? I'm trying to be supportive and encouraging, but the office staff are not very open to questions, and act irritated when we call. Her doc is fabulous!! We just can't get to him most days. Any suggestions are welcomed!!

Thanks for the help and support!!

[Woodie69]

LionandLamb,

I have no idea of what Pyriformis is. As for the staff of your physician, if it were me, I would address it with the dr directly. Give him/her examples of what you have experienced. Then, if things don't improve, ask for a referral to see someone else. Remember, nobody else is living in your body but you. You are paying money - your cold hard cash - to a scientist for their medical brain. That is the long and short of it. It is a service industry. You are the boss, not them.

I take napro. for muscle cramps, and lortab for pain. Lortab works great for me (better than Darvecet). I just wish they wouldn't make me so tired, and sleepy. That is the one side effect that I don't like. But for now, they work miracles. I also take Zonegran for my seizures. It is the one drug that has really stopped them dead in their tracks. For my migrains I take Relpax. Topamax made me sick as a dog.

On our local tv station one of the reporters did a report on neti-potting for allergy and sinus sufferers. It looks odd, but if it works - go for it. Personally, I have never heard of this before. Has anyone else? Does anyone here do this? I take Zertec and Patanol for my allergies. I wouldn't be caught dead without them - esp. this time of year. It is a bad pollen year - that's for sure!

Glad to see you back here. You are always missed.

Love and peace to all,
Andrew

[Woodie69]

A.A. Gabe,

I live with TBI. Finding and keeping a job is very hard for me. Most employers turn their backs on those of us with disabilities. They don't want to deal with the issues surrounding those of us who are "different". They want someone who is ready, willing, and able to work. They don't want to hire someone who has limitations as to what they can and cannot do. It is like a big, neon sign blinking DO NOT HIRE.

I have been in the same job for over 10 years as a forklift driver. It is something that I enjoy doing - driving. It is repetitive. And some would not like working alone, but I enjoy it. It gives me time to do my own thing, and be responsible for my own work. I drive a standup forklift. It has 2 gears, plus the foot pedals. You have to be able to "not think" about what you are doing to drive it. I am also Dyslexic, which makes it easy for me because the gear shift, and stearing wheel are round balls and in reverse of driving a car or truck. Now, my day was 10 hours long plus over time. Then my scheduled changed to accomodate the transportation from the ports (everything we got was from China, Asia, all over seas). I could work 7 days a week for 7 weeks, then I would have to work 6 days a week for so many weeks. Then the labor board got involved in a massive lawsuit against my employer. So then we had to work 8 hours a day, have 2 breaks, and lunch, 5 days a week. It could include weekends depending on the ports and how things were going.

I don't drive a walkie rider - way too difficult for me to figure this thing out. The gears are buttons. The cherry picker is out because I am afraid of heights. In my building we have our own weather because of how large and tall it is. So, if you are in a cherry picker, you may get rained on. So, I am not one for that.

Now, the down side of my employer...my employer has fought me tooth and nail over everything. They have tried firing me for petty things like filling out my attendance sheet wrong, or putting in the wrong date, or spelling a code backwards. Then I worked with a guy who pulled a knife on me, and threatened me. He cursed at me on a regular basis, which managers heard, and punched and kicked merchandise (breaking it) on the dock. All visable to everyone working on the dock. I ignored him. He was never written up for this behavior. Never. But I was written up for instigating him to behave like this. All because he could pull more loads than I could. Yep. Just based on production levels.
I also actually have been written up sooooo many times for things like this I just shake my head, and hope and pray that none of my boss's have a family member who has a learning disability or some disability that limits their ability to work. Then they will know the evil they have inflicted upon me. I don't wish them well, but I also don't wish good upon them either. I believe in Karma - what comes around goes around.

If you can go somewhere to learn to drive a forklift, go. You will get a license that nobody can take from you. It is a lifetime certificate. When you change jobs, you show them your license, and they can test you on their equipment and issue you a certificate of their own. It just passes from one company to the next one you go to.

PM me if you have any questions.

[DAYWALKER]

I gotta tell ya...

Pharmacological dependence is often the cause of ongoing symptoms.
Often people do not notice this, due to the fact that they are very busy trying to kill the pain with the very things that are launching it.
......
I smoke my medication...lol, and rarely concede to taking anything more than that. Naturally, due to the events 2 months ago...I was at the mercy of pills...and hated it! I am still in a fair amount of pain sometimes, but I am stubborn as hell and choose not to take them if I can avoid it.


My hands are killing me today.

I wrote for hours yesterday to finish Session Three...and already have quite the head start on Session Four of my story. Did I mention...my hands are killing me?!? Lol, I will have a little cocktail today to celebrate the completion of another Session. The Fourth one should be the final one. Anyone else on Live Journal? The story has been posting in there as well as here, but LJ allows for embedding of media, as well as some pictures that help tell the story. I'll be glad when it is complete...there is a certain medicinal power to getting it all out of my system, and I can already feel the release coming on.


Woodie...let's have a cigar in Dallas...yes?

[OutlawDaddy]

My hands are killing me today.

How about Voice Recognition Software like Dragon

Naturally Speaking...You Talk...It Types


http://www.nuance.com/naturallyspeaking/


http://www.consumersearch.com/www/software/voice-recognition-software/index.html


http://www.voicerecognition.com/


Ebay: Search Voice Recognition and there are $30 imitations . . .
or
browse . . .

Home > Buy > Computers & Networking > Software > Business & Productivity> Voice Recognition


Good Luck...OD

[DAYWALKER]

How about Voice Recognition Software like Dragon

Naturally Speaking...You Talk...It Types


http://www.nuance.com/naturallyspeaking/


http://www.consumersearch.com/www/software/voice-recognition-software/index.html


http://www.voicerecognition.com/


Ebay: Search Voice Recognition and there are $30 imitations


Good Luck...OD

You totally rawk OD...lol!

In have Point and Speak, but I had purchased it from AOL about 4 years ago...and now it will not work! I did some research and found out that the company changed hands and I will have to re-purchase the damned thing! Lol...it took me like 2 hours of reading bullshit into a microphone just to program it!

I have so many stories, yet to be posted/published that I have hand written, and I had set aside a whole day to narrate them into document form...and that's when In found out it no longer worked. Naturally, no one at AOL seems to be able to kick me down any feasible answers, other than I have to buy it again.

My tower is still in ICU...lol, but the music is being recovered (about 8,000 files!), so the loss of its presence right now is well worth it.
Meanwhile, I am using M'Lady's new Lap Top I bought her last month, and it is causing my hands more issues than they already have. I have to finish the story though...so it is a harsh trade off.

Thank you OD...I will be buying another one next month. I spent my allowance this weekend on...lol, a particular cocktail that is a bit pricey...but I rarely drink...and I turn older tomorrow...so I went for it!

[Woodie69]

Sir Daywalker,

God willing I will smoke cigars with you in Dallas!

Rosie and I are still trying to figure out our finances. We soooo want to go. Our problem is worker's comp. and my case. My employer is fighting everything. They are making mountains out of mole hills. My employer is filing issue after issue with the w/c commission. They have filed issues ranging from everything dealing with my allergy medication to why I have physical therapy. It has been nothing short of a nightmare. One week I get paid, the next I don't because "they lost my paperwork" or "the system booted me out". So, it is just a wait and see sort of thing (which I hate and Rosie is barely tolerating right now).

[curley]

Hi everyone
I haven't posted here in a while because I was on a trip, which was needed since I havent been away for 3 years. I'm reflecting and processing on how the travelling affected my health. basicly my symptomns did'nt get any worse (thank heavens) I did find the airport process somewhat confusing and seem to have caught a cold or some chesty thing on the flight home, I seem to have slept very well due to temp? black out curtins? no stress? who knows. I do know i went with a friend and it gives me a gauge for planning future travel. Anybody have any helpful experiences with travelling?